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ASD

patrice

hi there can anyone please give me some advice my son was diagnosed with ASD last sept he left mainstream school last november, since going to special school he has just had a CAF  and they are questioning his diagnosis of ASD  , my son has had walking difficulties since  he could stand  and kept falling down , he never baby babbled are mixed well at school ect  , at the age of 8 had went through a dcd clinic which diagnosd him with global motor skill diff and short term memory , and aknowledged his left sided weakness but would not give a diagnosis in writing , only said he thought he had dysparxia n hypermobile joints, then he would see him in another 12mnths, i asked my gp for a 2nd opinion which i recieved out of the borough he was diag with unilatrall cp the consultant  then last year gave him a a additional diagnosis of asd  now the school phyciatrist is questioning it and looks like she wants to do assessment hrself?  then at the caf the ot that saw my son at the dcd clinic assesed him for a hour are so at school and said he has no problems ,initiated play, spoke clearly, walked up 2 flights of stairs, listened and done what ws asked of him no behavouaral problems at all , could fasten his shoe laces , even though not tight to keep his shoe on, i didnt agree i couldnt believe it i never see this at all, she then went on to say it was all anxietys not ASD, and that she didnt agree with his diagnosis as she felt it had been made of the cuff as her side have to go through numerouse assesments before giving a diagnosis....  considering she never new my son till he was gone 8 and has never had any involvment with him since then i am annoyed in respect of her  x he wears a afo on his left leg for support and is awaiting his botox injections,his teachers say he is a v well mannered boy who they never see anxietys, at all  ... at home he screams shouts, hits me and his dad and his siblings , growls at us in a robot voice, constanly is argumentative , repeatedly asks the same questions over and over again, at night does not like to sleep , has fears and will not sleep alone ,and  is compelled to tell everyone what he is thinking individually and at night awakes and does the same wakes everyone up independendently to tell them what he wants them to hear, he cannot abide crowds , supermarkets ect gets angry and fearfull,  and becomes aggitated and wants to go , leave ,academically functioning still around a 5yrold, he doesnt understand jokes, sarcasm, and takes everything literally ect ect  i rang his consultant as i was very upsett by this she was so annoyed , now i have a app at home with the dr phsyciatrist coming out to assess my son at home from the cyps and school !! i am not having my son put through assesments again to please others this is just not fare and very upsetting to us all  can anyone help me please xxxxxx

Parents

  • My first reaction is to check the qualifications of the "school psychiatrist" to diagnose asd. This is presumably a psychiatrist whose services the school can call upon, but it is not appropriate for this person to just do her own thing! You have rights.

    Diagnosis seems to be complicated by coordination and mobility issues and an earlier assessment of dyspraxia. So what you appear to have at the moment is a diagnosis of dyspraxia with comorbid ASD. But you say he has an ankle foot orthotic presumably to relieve weight bearing on his left leg. I think too it would help if you could explain the botox injections - presumably there's a medical diagnosis requiring botox to be given to a child - it would normally be inadvisable.

    Given all those issues it is not surprising your son shows stress and anxiety.

    As to different behaviour at school, if you look through some of the other discussions, including sticky topics at the top of lists which address this issue, it is very common for children with asd to try to conform at school. The bullying levels for being different are high, and many children try ever so hard to be low profile, but then let go of this restraint at home, which they see as a safe environment away from mocking eyes.

    You need to get advocacy support here. You shouldn't be left to fight all these barely cooperating professionals on your own. If you go to the "find local support or services" area on the bottom right of the NAS Home or Community page, you should be able to find a parent's group (either an independent or one run under NAS) in your area, or an adjacent area. They could help you find advocates to support you through this.

    I'm pretty shocked at how the school is behaving.

    Hopefully others will come in with some support.

Reply

  • My first reaction is to check the qualifications of the "school psychiatrist" to diagnose asd. This is presumably a psychiatrist whose services the school can call upon, but it is not appropriate for this person to just do her own thing! You have rights.

    Diagnosis seems to be complicated by coordination and mobility issues and an earlier assessment of dyspraxia. So what you appear to have at the moment is a diagnosis of dyspraxia with comorbid ASD. But you say he has an ankle foot orthotic presumably to relieve weight bearing on his left leg. I think too it would help if you could explain the botox injections - presumably there's a medical diagnosis requiring botox to be given to a child - it would normally be inadvisable.

    Given all those issues it is not surprising your son shows stress and anxiety.

    As to different behaviour at school, if you look through some of the other discussions, including sticky topics at the top of lists which address this issue, it is very common for children with asd to try to conform at school. The bullying levels for being different are high, and many children try ever so hard to be low profile, but then let go of this restraint at home, which they see as a safe environment away from mocking eyes.

    You need to get advocacy support here. You shouldn't be left to fight all these barely cooperating professionals on your own. If you go to the "find local support or services" area on the bottom right of the NAS Home or Community page, you should be able to find a parent's group (either an independent or one run under NAS) in your area, or an adjacent area. They could help you find advocates to support you through this.

    I'm pretty shocked at how the school is behaving.

    Hopefully others will come in with some support.

Children
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