Fighting for a diagnosis

Hello all,

I wonder if anyone else has been in this situation - my 5 year old son has been waiting for his Ados for 2 years. I always knew he was different from about a year old, I cant pinpoint exactly what it was, but as he got older, his behaviour did not quite fit, and when he went to Nusery, his teacher quickly flagged up to me that she agreed with my worries that he was autistic. 

We got him referred to the child development clinic, and after 2 of waiting, he finally is going to get his Ados at the end of the month. The lovely speach and language specialist was out to see us the other day, she is the one who will be playing with him at the asessment. Unfortunately he was having a great day when she came and she says she cannot see any signs of autism, and that his interaction with the other children at Nursery was fantastic. 

This is just a tiny snippit of the picture she has seen, and I dont understand how she can make assumptons on one day and then an hour of play at the assessment. 

He has an amazing Nursery teacher who has supported him in every way he needs. He has come on in leaps and bounds since he began, but only because of her input and strict "regimen"  when he goes into Primary 1 after the summer, I am worried he is going to struggle greatly with the change, and there will be no extra supprt for him if he is not diagnosed, and then, if he needs it, he has to go back through Cahms, which could be another 2 year wait for a re-assessment.

I feel like I am pushing constantly to make people see something in my child that I dont really want to be there anyway, and am starting to think it is all in my head. I also have a feeling that one of my 3 year old twin girls might be showing signs of ASD as well, but everyone thinks I have become obsessed and I am sure some friens think I actually am thriving on having something wrong with my children.. sometimes feel I am going mad....is it only me?

Parents
  • Thank you all, I will just have to see what happens on the day - he will be out of his comfort zone so he wont be nearly so compliant - infact they probably wont get him to do anything at all. I am going to write down absolutely everything I can think of before hand and bring it with me.

    It is so sad that we actually have to fight for a diagnosis for our children - and people, even my close friends I am sure think I am obsessing about it and like misskittykat and shopgirl said, seeing autism everywhere.... thing is, when autism touches your life, it becomes such a major part of it. I would not change my kids for the world though( well maybe a few wee bits here and there) who they are is fine, but I just want the help they need availible.

    Thank you all for your help xxx

Reply
  • Thank you all, I will just have to see what happens on the day - he will be out of his comfort zone so he wont be nearly so compliant - infact they probably wont get him to do anything at all. I am going to write down absolutely everything I can think of before hand and bring it with me.

    It is so sad that we actually have to fight for a diagnosis for our children - and people, even my close friends I am sure think I am obsessing about it and like misskittykat and shopgirl said, seeing autism everywhere.... thing is, when autism touches your life, it becomes such a major part of it. I would not change my kids for the world though( well maybe a few wee bits here and there) who they are is fine, but I just want the help they need availible.

    Thank you all for your help xxx

Children
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