Fighting for a diagnosis

Hello all,

I wonder if anyone else has been in this situation - my 5 year old son has been waiting for his Ados for 2 years. I always knew he was different from about a year old, I cant pinpoint exactly what it was, but as he got older, his behaviour did not quite fit, and when he went to Nusery, his teacher quickly flagged up to me that she agreed with my worries that he was autistic. 

We got him referred to the child development clinic, and after 2 of waiting, he finally is going to get his Ados at the end of the month. The lovely speach and language specialist was out to see us the other day, she is the one who will be playing with him at the asessment. Unfortunately he was having a great day when she came and she says she cannot see any signs of autism, and that his interaction with the other children at Nursery was fantastic. 

This is just a tiny snippit of the picture she has seen, and I dont understand how she can make assumptons on one day and then an hour of play at the assessment. 

He has an amazing Nursery teacher who has supported him in every way he needs. He has come on in leaps and bounds since he began, but only because of her input and strict "regimen"  when he goes into Primary 1 after the summer, I am worried he is going to struggle greatly with the change, and there will be no extra supprt for him if he is not diagnosed, and then, if he needs it, he has to go back through Cahms, which could be another 2 year wait for a re-assessment.

I feel like I am pushing constantly to make people see something in my child that I dont really want to be there anyway, and am starting to think it is all in my head. I also have a feeling that one of my 3 year old twin girls might be showing signs of ASD as well, but everyone thinks I have become obsessed and I am sure some friens think I actually am thriving on having something wrong with my children.. sometimes feel I am going mad....is it only me?

Parents
  •    thankyou ,  now i dont feel so alone with this, its so upsett me i am so so annoyed and upsett by it all , i was told by his consultant this behaviour at home is the ,  ASD as it brings with it high anxiety's fears , i dread him coming in from school as its literally walking on eggshells, he always complains of headches too as he walks through the door if not that its tightness in his chest ,i think its beacause he is holding  it all in at school so his anxietys are so high sometimes he cant breath for being so worked up ans as he is telling me who has upsett him during the day he gets worse, then the whole show begins its a nightmare  xxx

Reply
  •    thankyou ,  now i dont feel so alone with this, its so upsett me i am so so annoyed and upsett by it all , i was told by his consultant this behaviour at home is the ,  ASD as it brings with it high anxiety's fears , i dread him coming in from school as its literally walking on eggshells, he always complains of headches too as he walks through the door if not that its tightness in his chest ,i think its beacause he is holding  it all in at school so his anxietys are so high sometimes he cant breath for being so worked up ans as he is telling me who has upsett him during the day he gets worse, then the whole show begins its a nightmare  xxx

Children
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