Assessment - idiot Doctor!

Hello, I've never posted here before but just need to moan really to people I hope will understand.

I have a 9 year old son dx as high functioning and I have a 22 month old who dh and are are pretty sure is also asd and also high functioning. Our health visitor is lovely and was quite happy to refer us to see a peadiatrician (new for us as older son went through CAMHS). Anyway we went to see the pead who asked various questions and did a physical check and then she went off to get another doctor who came in and told me there was no way he could be autistic as he talks! She said his speech was assessed at 32 months and he is clearly very advanced and he may go on to develop Aspergers but is definately not autistic.

I had told the first doc that I spend time engaing in imaginative play with him and we have a few books for his age about happy face/ sad face etc and I feel happy/ scared/ excited when etc.. DH and I have agreed that if he is ASD then lets get in early with this stuff and if he's not it's not going to do him any harm. Well the doc told me to stop treating him like is has ASD and that having one child with ASD doesn't mean there is any higher chance of a second child having it.

I came away questioning everything and wondering if his behaviours are my fault or if I'm just being paranoid but I'm also really shocked and angry that someone who is supposed to be assesing him could have such a poor understanding of ASD!

Has anyone else had a similair experience? Is this level if ingonrance common?

Parents
  • Contact the paediatrician and ask him why he is not aware of or following NHS NICE Guidelines with regards to identification of autism:

    http://www.nice.org.uk/nicemedia/live/13572/56428/56428.pdf ...in which it says that having a sibling with autism means higher risk (and this is scientifically researched) and not to rule out the possibility of autism because of a variety of reasons.  It also says to listen to the parent's concerns.

    I would also question why he is not aware that Asperger's is autism, and you don't develop it, it is a lifelong neurological disorder.

    You can ask your GP for a referral for a 2nd opinion due to this poor experience where they clearly lack the most basic expertise.

Reply
  • Contact the paediatrician and ask him why he is not aware of or following NHS NICE Guidelines with regards to identification of autism:

    http://www.nice.org.uk/nicemedia/live/13572/56428/56428.pdf ...in which it says that having a sibling with autism means higher risk (and this is scientifically researched) and not to rule out the possibility of autism because of a variety of reasons.  It also says to listen to the parent's concerns.

    I would also question why he is not aware that Asperger's is autism, and you don't develop it, it is a lifelong neurological disorder.

    You can ask your GP for a referral for a 2nd opinion due to this poor experience where they clearly lack the most basic expertise.

Children
No Data