Question for the NAS (Campaigns Department?)

I had this information 2nd hand, but the person who told me is well-connected.  They will get their come-uppance don't worry, local services are currently under scrutiny.

I'm really shocked to hear that the SEN department in your area does a group cheer every time a parent gets refused a statement.

That's repulsive.  Name and shame the authority?

Thanks Anil A - Mod.  It's the professionals out there (such as clinicians, the LA and support services that I was having a rant at, not the NAS!)

My apologies IntenseWorld, this was brought to my attention by Adél shortly after you posted, and I passed it onto our campaigns team. I had hoped for a quicker response from them, which is why I hadn't posted a response yet. I'll press them today.

We do read everything that's posted, but getting a response from other teams can take time.

I don't think professionals have enough humility to care what the real people of the autistic world and their families have to say.  When I got told that the SEN department in my area do a group cheer every time parents get refused a statement for their child, that spoke utter volumes.  They see us as the enemy, people to be batted away as much as possible, we are a drain on services and a fly in the ointment.  Priorities are all wrong.  They forget what they are actually there for.  Considering the known ratio is at least 1 in 100 (and likely rising), you'd think they'd have realised what is needed and got on with it.

They sit in their ivory towers, having no clue what it's really like to live with autism and  the daily challenges, and clearly not thinking we could possibly have anything to say that would benefit them.  They don't even keep up-to-date on research and latest developments!

It just makes me angry, when you see articles like this:

http://www.dailymail.co.uk/health/article-2507383/Thousands-GIRLS-undiagnosed-autism-hide-signs-better-boys.html ...and see that this is in the public domain and yet nothing is being done.

Longman has previously posted things that moderators have passed on to the relevant department after some pushing.  Hopefully this thread will get the same attention.

Does anyone at the NAS actually read anything on the community.

By far the most important information about people on the spectrum comes from this area of the website, yet it seems the NAS (and autism professionals) ignore it.

WHY?

This is really important. So called professionals need informed training, and the NAS should be lobbying for it.

Hello?