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Some Advice

starsmile

Hi

My son is to be formally diagnosed with Autism at the end of the month at a team around the child meeting.  The diagnosis was confirmed by the consultant, and he said that he would place on the middle of the spectrum.  Now this is where I would like some advice and guidance - to what 'middle of the spectrum' is for others? and also when the offical meeting takes place should I be asking any questions or raising anything else at this?  (My son is just short of being 3).

I have the DLA claim forms as the specialist HV suggested that I should apply as she felt he was eligable, but oh my - just knowing what to put in, and it varies so much weekly - some night I just need to settle him a couple of times a night (perhaps 5-10 mins max) and then I can get a week or more where he is up for 3+ hrs during the night wanting to watch beloved Thomas. - how to get this accorss - some say write it as if the bad happens and some say write the normal/average - which there is none, I wish I knew how much sleep I may get....?

 

With hope of some answers or suggestions.

 

Many thanks

Parents

  • Hi there,

    Please be aware you do not need to fill out these horrible DLA forms on your own. There are people out there who can help you. I use the citizens advise centre but I know that other places like the carers centres etc also help people. If the forms are filled out correctly in the first place, I swear they use a different language at the DLA office than the rest of us and thats what can make a difference!, it can help the stress levels by avoiding appeals etc and if it does have to go to appeal they then represent you. Please get proffesional advise, i didnt at first so I learnt the hard way and had to appeal right up to tribunal level. Happy ending though I did get DLA in the end. Also if you have already filled in forms on your own and need to appeal, its not too late you can approach people to help at any stage.

    good luck

    Sam

     

Reply

  • Hi there,

    Please be aware you do not need to fill out these horrible DLA forms on your own. There are people out there who can help you. I use the citizens advise centre but I know that other places like the carers centres etc also help people. If the forms are filled out correctly in the first place, I swear they use a different language at the DLA office than the rest of us and thats what can make a difference!, it can help the stress levels by avoiding appeals etc and if it does have to go to appeal they then represent you. Please get proffesional advise, i didnt at first so I learnt the hard way and had to appeal right up to tribunal level. Happy ending though I did get DLA in the end. Also if you have already filled in forms on your own and need to appeal, its not too late you can approach people to help at any stage.

    good luck

    Sam

     

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