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Some Advice

starsmile

Hi

My son is to be formally diagnosed with Autism at the end of the month at a team around the child meeting.  The diagnosis was confirmed by the consultant, and he said that he would place on the middle of the spectrum.  Now this is where I would like some advice and guidance - to what 'middle of the spectrum' is for others? and also when the offical meeting takes place should I be asking any questions or raising anything else at this?  (My son is just short of being 3).

I have the DLA claim forms as the specialist HV suggested that I should apply as she felt he was eligable, but oh my - just knowing what to put in, and it varies so much weekly - some night I just need to settle him a couple of times a night (perhaps 5-10 mins max) and then I can get a week or more where he is up for 3+ hrs during the night wanting to watch beloved Thomas. - how to get this accorss - some say write it as if the bad happens and some say write the normal/average - which there is none, I wish I knew how much sleep I may get....?

 

With hope of some answers or suggestions.

 

Many thanks

Parents

  • Hi there,

     I have only this week been awarded DLA for my 4 years old son .I applied for it in may and at first I was refused as they only contacted the nursery and not his doctor . I asked for a review and I wrote a 4 page letter describe his daily routine including night time and I put in the best case scenario and the worst case .I found the form doesn't allow you to express yourself correctly . DLA is awarded if the care that you provide your son is more than is required for any other child of that age not for his diagnosis . Be honest about the amount of care that you provide as I felt that I took the amount of care I give as the norm but after keeping a diary for 2 weeks discovered that is not the case . I think we are all guilty of this    I hope this helps you a little x

     

    shirley

Reply

  • Hi there,

     I have only this week been awarded DLA for my 4 years old son .I applied for it in may and at first I was refused as they only contacted the nursery and not his doctor . I asked for a review and I wrote a 4 page letter describe his daily routine including night time and I put in the best case scenario and the worst case .I found the form doesn't allow you to express yourself correctly . DLA is awarded if the care that you provide your son is more than is required for any other child of that age not for his diagnosis . Be honest about the amount of care that you provide as I felt that I took the amount of care I give as the norm but after keeping a diary for 2 weeks discovered that is not the case . I think we are all guilty of this    I hope this helps you a little x

     

    shirley

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