Published on 12, July, 2020
Hi,
My four year old suffers with chronic constipation- 1 unbelievable sized poop about every four days (diet is amazing, lots of veg ect and take probiotics). Happy boy, wore clothes, went to nursery. He was started on high dose laxido 6+1 for everyday he didn't poop. The laxido turned the poop liquid but it still was not coming out and required urgent acute admissions for enemas (now doing these at home). My son was in extreme pain daily, I mean like a wild animal and biting his arm black and blue- relieved instantly by enema. We have stopped laxido and are now on lactulose and senna. Again nothing for four days and then pain and he requires an enema. The Drs diagnosis is autism- is is autism that's causing the slow motility and a sensory over reaction to the sensation as an explanation for the pain. I feel like I have been to war the last few months and am desperate for help and all I'm getting is autism and no investigations or tests?!?!? I feel that if any child had 21 sachets of laxido in there gut festering for three/four days they would also be in agonizing pain but would get investigations done. Anybody experienced anything similar?
Autistic people are also more likely to carry the gene that causes Hirschsprung's disease and other neuropathic disorders of the digestive system. There is a lack of nerve cells in the intestine and as a result the intestine does not transport the excretions. Research into this is being carried out at the University of Heidelberg. I have autism and a malformation of the nerves in my intestines. Maybe you can ask a pediatrician about Hirschprung's disease or desmosis or dysganglionosis? These are the names of the diseases in question.