New year! Time to get diagnosed...

Tomorrow is my appointment with the doctor to discuss about me finally getting a diagnosis.  I was told just over 3 years ago that there was a 99.99% chance I was on the autism spectrum (can't legally say 100% without an official diagnosis) but because there were no facilities to be diagnosed they didn't see the point in putting me through with it (I lived in Inverness, Scotland, at the time), and also with being an adult they said even if I were to get diagnosed there wouldn't be anything in the form of support for me so again, it was a pointless waste of time.  There has been times in my life where I've struggled with particular things, and to be able to say 'it's because I'm on the autim spectrum', it's been easier to explain to people why it is I do the things I do, which helps me to feel more comfortable.  

Management at my work have been supportive and helping me with special requests at work, like, wearing ear defenders/head phones when I need to block out noise around me when it gets too much (we're not allowed to wear headphones at work in case the phone needs answered), or letting me go for short breaks if I feel uncomfortable, etc, but, in a way I feel like I'm lying to them, even though I'm not, because I don't have that official diagnosis on my records.  I live 100 miles from Inverness now but there is still similar problems with autism support here so I'm hoping I will get somewhere.  Doctors keep putting me on all sorts of medication when all that will help me is some more CBT and some quie time away from people and crowds.  

I'm going to keep track of my progress on here because it will spur me on to keep going with it.  I've mentioned I've wanted a diagnosis so many times and been shot down so much I don't want to stand for it any more.  I'm going to do whateverit takes to get me, and others on the spectrum, the diagnosis and support they need in my local area.

  • I got a letter from the hospital today saying they want me to come to the Adult Mental Health department of my local hospital on the 13th March.  Hopefully something positive will come from it.  I've never been to this particular hospital but I have a map so I should be OK.

  • Thanks  :)

     

    I've seen a different doctor because my usual one wasn't available, which was probably the best idea because this one doesn't want to treat me with lots of pills.  My previous doctor kept wanting to put me on diazepam!  I've been referred to get psychiatric help, but the waiting list is months long, and that's just to start to get some help, not even to get a diagnosis.  Can't believe how long it takes.

    I'm not doing great today.  I'm at work but I really do not feel like talking to anyone.  It is a little bit frustrating how my life has to suffer for months until I get the psychiatric help I need again.  I'll just have to carry on with my brave face until help eventually comes my way.

    There is a private healthcare thing through work I can use, but  idon't know if it would cover this.  I'll have to investigate, but if I can use it then I really feel for others who have to wait so long for the support they need.

  • Sometimes we have to fight for what is ours by right and if you feel it would be a benefit to you then go for it. There may not be support from them but you will find support elsewhere if you seek it :) Good luck with your quest.