stomach problems

i am writing this as a mother who has really doesnt know what to do for the best any more so bad now is our situation .my son has aspergers he is 24 a twin born 7 weeks early for as long as i remember he has suffered terrible somach pain no matter how often i took him to the doctor as a child they and the school always treated it as him wanting time off school.As he got older the pain increased along with diahorea often days of it until he had to leave college at 18 he became very thin as he ate little and lost what he did eat,we were told he had IBS given Buscopan that did nothing to help.Over the last week 6 years we have seen specialists seen our GP often he now has stomach ulcers and we,ve tried every acid tablet known to man he lives on strong pain killers and spends every single day and night in such horrific pain he rarely goes out as he needs to be near a toilet as a mother to have to watch your child in so much pain is awful and you expect the doctors to see how serious this is and to help yet they are always light hearted and juggle medication saying try this try these nothing works Today my son tells me ive had enough of being n pain every day i dont want this any more !!! we got some more tablets from a different doctor who just happened to mention what we always suspected "on your notes it says you have aspergers that you need mental health " obviously they all think its all in his head well they dont live this daily ! any one have any advice please im desperate

Parents
  • crystal12 said:
    Hi - a lot of gd advice.  The most important thing is to get the ulcers under control.  Anxiety produces acid which produces nausea, discomfort + ultimately ulcers, given enough time.  Therefore he must stay on the anti-acid meds or the ulcers will get worse.  I suspect there are many posters/lurkers here (autistic or not) who suffer anxiety + have varous digestive problems brought on my anxiety.  It is possible your son feels pain more acutely than most other people.  Some pain meds contain aspirin which is known to irritate the stomach. Therefore he needs a strong med that doesn't have that composition.  Does he take any other meds, an SSRI for example, which may help to make him feel less anxious?   As someone who knows quite a lot about digestive problems, my personal opinion is not to recommend alternative meds. They are unproven + can clash with other prescribed meds.  There's always allergy testing to consider, if you think it worth while.  I do hope you can find a solution to this as it must be so distressing for all of you.

    coffeecup did say in her last post that he was tested for allergies already.  In my post about alternative remedies, I said he could be weaned off the painkillers not to take them alongside traditional medications, and even if they were taken alongside, I would expect anyone to check for contraindications of taking any two medications together.  There have been a lot of people that have benefitted from natural remedies.  Many traditional medications come from plants and natural substances anyway.

    It's not true that their efficacy is unproven, you might like to see this for instance:

    www.sharecare.com/.../how-evidence-effectiveness-herbal-products

    How strong is the evidence for the effectiveness of herbal products?

    Debbie Nogueras, MSN, Nursing, answered on behalf of Honor Society of Nursing (STTI)

    The evidence for natural remedies is growing by leaps and bounds thanks to the research by the National Institutes of Health - National Center for Complementary and Alternative Medicine http://nccam.nih.gov/research/ in the U.S.

    Note, the German Commission E: Monographs, have been publishing results for many years. cms.herbalgram.org/.../approvedherbs.html and the FDA (although they treat herbs as foods not drugs) has issued guidance on the use of such products. www.fda.gov/.../ucm144657.htm

    Most importantly, any individual who chooses to take herbal remedies should discuss with their health care provider, specifically for potential interactions with commonly prescribed prescription drugs or other treatments.

    And even were it not proven, that's not the same as saying they don't work, it just means it's untested in scientific research.

Reply
  • crystal12 said:
    Hi - a lot of gd advice.  The most important thing is to get the ulcers under control.  Anxiety produces acid which produces nausea, discomfort + ultimately ulcers, given enough time.  Therefore he must stay on the anti-acid meds or the ulcers will get worse.  I suspect there are many posters/lurkers here (autistic or not) who suffer anxiety + have varous digestive problems brought on my anxiety.  It is possible your son feels pain more acutely than most other people.  Some pain meds contain aspirin which is known to irritate the stomach. Therefore he needs a strong med that doesn't have that composition.  Does he take any other meds, an SSRI for example, which may help to make him feel less anxious?   As someone who knows quite a lot about digestive problems, my personal opinion is not to recommend alternative meds. They are unproven + can clash with other prescribed meds.  There's always allergy testing to consider, if you think it worth while.  I do hope you can find a solution to this as it must be so distressing for all of you.

    coffeecup did say in her last post that he was tested for allergies already.  In my post about alternative remedies, I said he could be weaned off the painkillers not to take them alongside traditional medications, and even if they were taken alongside, I would expect anyone to check for contraindications of taking any two medications together.  There have been a lot of people that have benefitted from natural remedies.  Many traditional medications come from plants and natural substances anyway.

    It's not true that their efficacy is unproven, you might like to see this for instance:

    www.sharecare.com/.../how-evidence-effectiveness-herbal-products

    How strong is the evidence for the effectiveness of herbal products?

    Debbie Nogueras, MSN, Nursing, answered on behalf of Honor Society of Nursing (STTI)

    The evidence for natural remedies is growing by leaps and bounds thanks to the research by the National Institutes of Health - National Center for Complementary and Alternative Medicine http://nccam.nih.gov/research/ in the U.S.

    Note, the German Commission E: Monographs, have been publishing results for many years. cms.herbalgram.org/.../approvedherbs.html and the FDA (although they treat herbs as foods not drugs) has issued guidance on the use of such products. www.fda.gov/.../ucm144657.htm

    Most importantly, any individual who chooses to take herbal remedies should discuss with their health care provider, specifically for potential interactions with commonly prescribed prescription drugs or other treatments.

    And even were it not proven, that's not the same as saying they don't work, it just means it's untested in scientific research.

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