Hi all
I am wondering if anyone here is diabetic? My son was diagnosed in August last year, three weeks after turning 19. He is maintaining good control of his glucose levels, mainly through refusing to eat breakfast and being extremely insulin sensitive.
We found out yesterday at an information day that a closed loop system would really help him with his insulin sensitivity (half a unit Novorapid correction took him from 14.5 to 4.8mmol) and his constant CGM alarms and sleepless nights. He doesn't feel lows coming on, and he is getting hyper fixated on avoiding highs, to the point he doesn't eat breakfast anymore and has lost a lot of weight.
Today I found out that he is on the "young adult" services but they technically see him as an adult as he is over 18. I would strongly argue that he is a lot younger emotionally, and they should treat him as such, but it is gathering resources to show medical people to see him as an autistic person rather than ignoring that. He is absorbing information about it really quickly but he is processing it in a sort of messed up way, like not eating any more. A pump would allow him to be given tiny corrections and not have constant low alarms. And he would be able to eat without the fear of going above 10.
I need them to see him for who he actually is, and how his obsessiveness is starting to hurt him here, before it is too late.
Does anyone have any resources or information that would help? Does he have any rights as an autistic patient?
His greatest fear is being seen as autistic and as different and standing out, and he is going to hate having to talk about this and he will be angry that I will say things about how he is coping (or how I am coping for him) but I swear to God once this new battle is over I will never bring it up again!!!
Thanks in advance, love to all
Emma
