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Where next if NHS assessment isn't available?

dunk-in-biscuit

Hi folks, this thread has probably been covered hundreds of times but can't see it.

After cautiously self-diagnosing myself with Aspergers and backing this us with the online tests and lots of reading I headed to my GP to formally ask for an assessment. As usual, what fell out my mouth while there wasn't exactly convincing but his realistic opinion was that due to lack of resources (or lack of willing) I was not going to get an assessment in Cumbria if I was not of school age. Now I can knock a few years off my age by shaving off the beard but the receeding hairline is a bit of a give away - so I think it is safe to say this route is closed.

I've been (thankfully) offered CBT to beat back the depression and social anxiety but understandedly they won't touch the aspergers with a barge pole.

But heres the rub......having started down the road I know I won't be able to move on until get some form of "answer" that makes sence of who I am. Self-diagnosis is fine but I could just as easily convince myself donkies only have three legs!

Have any of you any experience of how you gain certainty (and peace) about being on the spectrum in the absence of a formal assessment.

Regards Dunk

Parents

  • I filled out the test last night after reading the posts you provided. I really try to be honest when I fill these forms in. You know what you should say if you want a high score but I deliberately try to score low so I don't squew the test. Scored 9.

    What is far more telling to me is that I just didn't know how to answer some of the questions. Q7 for example. How do I know if I have trouble working out peoples intentions in a book. I listen to a lot of audio books and really enjoy them but do other people possess a greater insight than me...who knows!

    The idea of understanding what's going through someone elses mind or how they feel seems just ludicrous to me. It's difficult enough to work out what I feel most of the time. But thats all I've ever known so it's confusing but "normal" to me.

    I'm starting to see a route forward now. I think the next step is to get some of these thoughts and questions down in "Doctor speak" so that when I go back to the doc again I have a better understanding of where he is coming from. It seems a funny system that the patient has to do mental gymnastics to ensure the doctor will in fact listen to what you have to say.

    I suspect that's half the problem though, because I will turn up organised, calm, focused and seamingly perfectly stable and then expect them to believe me that I have serieous issues that are affecting both home, work and everything else I touch. Shame they don't see the state I'm in after I've fled from the doctors 30 minutes later.

    Thanks for everyones support. really appreciate it. Dunk

Reply

  • I filled out the test last night after reading the posts you provided. I really try to be honest when I fill these forms in. You know what you should say if you want a high score but I deliberately try to score low so I don't squew the test. Scored 9.

    What is far more telling to me is that I just didn't know how to answer some of the questions. Q7 for example. How do I know if I have trouble working out peoples intentions in a book. I listen to a lot of audio books and really enjoy them but do other people possess a greater insight than me...who knows!

    The idea of understanding what's going through someone elses mind or how they feel seems just ludicrous to me. It's difficult enough to work out what I feel most of the time. But thats all I've ever known so it's confusing but "normal" to me.

    I'm starting to see a route forward now. I think the next step is to get some of these thoughts and questions down in "Doctor speak" so that when I go back to the doc again I have a better understanding of where he is coming from. It seems a funny system that the patient has to do mental gymnastics to ensure the doctor will in fact listen to what you have to say.

    I suspect that's half the problem though, because I will turn up organised, calm, focused and seamingly perfectly stable and then expect them to believe me that I have serieous issues that are affecting both home, work and everything else I touch. Shame they don't see the state I'm in after I've fled from the doctors 30 minutes later.

    Thanks for everyones support. really appreciate it. Dunk

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