Where next if NHS assessment isn't available?

Hi folks, this thread has probably been covered hundreds of times but can't see it.

After cautiously self-diagnosing myself with Aspergers and backing this us with the online tests and lots of reading I headed to my GP to formally ask for an assessment. As usual, what fell out my mouth while there wasn't exactly convincing but his realistic opinion was that due to lack of resources (or lack of willing) I was not going to get an assessment in Cumbria if I was not of school age. Now I can knock a few years off my age by shaving off the beard but the receeding hairline is a bit of a give away - so I think it is safe to say this route is closed.

I've been (thankfully) offered CBT to beat back the depression and social anxiety but understandedly they won't touch the aspergers with a barge pole.

But heres the rub......having started down the road I know I won't be able to move on until get some form of "answer" that makes sence of who I am. Self-diagnosis is fine but I could just as easily convince myself donkies only have three legs!

Have any of you any experience of how you gain certainty (and peace) about being on the spectrum in the absence of a formal assessment.

Regards Dunk

Parents
  • So many GPs these days are a waste of space.

    Cumbria claims to have set up an Autism Partnership Board - that is an autism specific service rather than the usual meek add on the Learning Difficulties or Mental Health. You have to take such claims "with a pinch of salt" (ie cautiously), as this one met regularly for three years but last meeting was january 2013, but here goes: www.cumbria.gov.uk/.../default.asp (hand entered - cannot guarantee but search autism in cumbria if not.

    Of its four main areas the third is "Identification and diagnosis of autism in adults, leading to assessment of needs"

    Your waste of space GP will have been told about this, so I anticipate his reluctance is about saving partnership costs (and stuff all that hypocratic oath nonsense).

    Contact the Partnershp Board at autism@cumbria.gov.uk Phone 01539 713329 (Whinfell Office, Longpool, Kendal LA9 6ER) if they're still going.

    Investigate this service first, if it is still ongoing. They may be able to advise you how best to engage your waste of space GP in the process.

Reply
  • So many GPs these days are a waste of space.

    Cumbria claims to have set up an Autism Partnership Board - that is an autism specific service rather than the usual meek add on the Learning Difficulties or Mental Health. You have to take such claims "with a pinch of salt" (ie cautiously), as this one met regularly for three years but last meeting was january 2013, but here goes: www.cumbria.gov.uk/.../default.asp (hand entered - cannot guarantee but search autism in cumbria if not.

    Of its four main areas the third is "Identification and diagnosis of autism in adults, leading to assessment of needs"

    Your waste of space GP will have been told about this, so I anticipate his reluctance is about saving partnership costs (and stuff all that hypocratic oath nonsense).

    Contact the Partnershp Board at autism@cumbria.gov.uk Phone 01539 713329 (Whinfell Office, Longpool, Kendal LA9 6ER) if they're still going.

    Investigate this service first, if it is still ongoing. They may be able to advise you how best to engage your waste of space GP in the process.

Children
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