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Hospital Appointment

Amy

Hello

Hoping to keep this short so will not say a lot of detail about why I have the appointment, but I do.

On 30th Decmber at 2pm I have a appointment at hospital-in a Heart Center to see a specilist.  I do not completly understand what is wrong other than my heart does not as well as it should. the GP does not know any more so had to send me to the specilist.  (its a longer story than that honest) 

So, I have been having a lot of problems and really want to get my heart better so I can exersise and other things again, and not have major issues with standing up or being dizzy and falling over a lot. 

But, I also (ASD related) imagine a lot of problems with acually going to the appointment. New person -may not understand ASD, will end up none verbal, they will not know what is wrong etc.., New place -possible to be noisy, or buzzing no-one else can  hear, or too bright, or too many people, or no-where that I feel able to sit-I am very fussy about seats, confusing things - doctors make things so complicated going too fast and using long words I do not know what they mean, tests - I assume I will need a  few test for them to know what is wrong, like well as long as it is not anything touching me, noisy, bright, etc then im fine! (basically they is no test like that), treatment - i can not swalow tablets, well I do not know what they might want to do but I hope it is not bad. 

I know I need to go, so I can be better and be allowed to do exersise and my breathing problems and chest pains stop. but absolutly anything that can make the whole process at all easier would be amazing. I will definatly be taking sunglasses, ear defenders, something to fidget with and communication cards that I use already. But like anything else to help me to prepare for it or to cope with it would be a big help.

Amy 

Parents

  • Thank you for the replies. 

    Muckworm I did not know you could do that-if I did i wish i had did it before now. obviosly with it being christmas they will be closed or reduced services I expect, so even if I could use a phone I can not imagine them doing much to help me.   Also I did not know you could tell them before you go.  I have another clinic (for a blood problem, sepreate but I assume somehow linked to this heart problem I now have) and they are starting to get the idea that I have ASD and to help me- like they make me go less often than if I did not have ASD and sometimes mum goes and speaks to them without me going (she has the same thing and has been going years, since it is inhereted she can sort it out for me too, I just have to have a blood test at my drs which I am fine with and they talk about the reusult, it is all the waiting and people I do not like there) 

    Anyway, it is good to know you have good experience after saying you have ASD-I was planning to tell them soon when I get there, I have a rejustration form to take just annoyingly it does not say about any other condition/disability so I could write ASD, mum might have to tell them when I give them the form. 

    Oh, and to everyone just so you are clear it is outpaitines I am going to. At the moment (and I hope not at all!)  I am not in a ward or there overnight or anything, unless they suddenly say I have to or something. Just from mentions of machines or beds maybe it was not clear I am not expecting to have this. 

    What hapened to you is not good longman-especally that form. Did they get it sorted out to that you have AS and to find out what it is!?  And now I have a good and bad expereise of other people with AS/ASD and medical people. I am not really sure what to expect now, and will not know wich they are till I get there. 

    Thank you for telling me that Explorer. I will try and fill it in and give it to them at my appointment.  Just what is the bit that says what they have responsiblities to do and what ajustments they should make?  Or is they any more information about this somewhere else on the NAS website?

    Thank you again for replying to me.
    Amy 

Reply

  • Thank you for the replies. 

    Muckworm I did not know you could do that-if I did i wish i had did it before now. obviosly with it being christmas they will be closed or reduced services I expect, so even if I could use a phone I can not imagine them doing much to help me.   Also I did not know you could tell them before you go.  I have another clinic (for a blood problem, sepreate but I assume somehow linked to this heart problem I now have) and they are starting to get the idea that I have ASD and to help me- like they make me go less often than if I did not have ASD and sometimes mum goes and speaks to them without me going (she has the same thing and has been going years, since it is inhereted she can sort it out for me too, I just have to have a blood test at my drs which I am fine with and they talk about the reusult, it is all the waiting and people I do not like there) 

    Anyway, it is good to know you have good experience after saying you have ASD-I was planning to tell them soon when I get there, I have a rejustration form to take just annoyingly it does not say about any other condition/disability so I could write ASD, mum might have to tell them when I give them the form. 

    Oh, and to everyone just so you are clear it is outpaitines I am going to. At the moment (and I hope not at all!)  I am not in a ward or there overnight or anything, unless they suddenly say I have to or something. Just from mentions of machines or beds maybe it was not clear I am not expecting to have this. 

    What hapened to you is not good longman-especally that form. Did they get it sorted out to that you have AS and to find out what it is!?  And now I have a good and bad expereise of other people with AS/ASD and medical people. I am not really sure what to expect now, and will not know wich they are till I get there. 

    Thank you for telling me that Explorer. I will try and fill it in and give it to them at my appointment.  Just what is the bit that says what they have responsiblities to do and what ajustments they should make?  Or is they any more information about this somewhere else on the NAS website?

    Thank you again for replying to me.
    Amy 

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