pros and cons of private diagnosis advice needed

I am seriously fed up with the NHS and waiting for them to diagnose my 11 yr old son and im seriously considering taking him private, i was speaking to someone yesterday who recommended a dr in Cheshire Dr barker i think she is supposed to ne the best in England. Just want to know ate there any down sides to getting a private diagnosis?

Parents
  • Just to add, that they cannot refuse to help your child, what you would do, is go to your GP with the private diagnosis and ask for referral for support from CAMHS/CDC/whichever service and they write the letter.

    My own diagnosis is private and my GP has recognised it and put it on my health records.  Having said that, the NHS refuse currently to recognise it (even though I have overwhelming genetic, brain scan and medical evidence as well as the independent opinions of 3 separate professionals - one a top UK ASC expert) and for which I exhausted a PALS complaint and am pursuing a PHSO complaint currently.  Basically this was because the NHS failed to diagnose me previously (only citing autistic behaviours) and they don't want to admit they got it wrong.  They have also lied about the assessments and have colluded to do so.  It's just an example of what employees of the NHS can be like, and some clinicians have a God complex and will try to bat people away.  But my situation is different and your son hasn't been assessed so you won't face the same scenario, just be prepared to go well-informed just in case they do take that attitude.  And you can always say "fine, if you don't recognise the private diagnosis perform one yourselves".

Reply
  • Just to add, that they cannot refuse to help your child, what you would do, is go to your GP with the private diagnosis and ask for referral for support from CAMHS/CDC/whichever service and they write the letter.

    My own diagnosis is private and my GP has recognised it and put it on my health records.  Having said that, the NHS refuse currently to recognise it (even though I have overwhelming genetic, brain scan and medical evidence as well as the independent opinions of 3 separate professionals - one a top UK ASC expert) and for which I exhausted a PALS complaint and am pursuing a PHSO complaint currently.  Basically this was because the NHS failed to diagnose me previously (only citing autistic behaviours) and they don't want to admit they got it wrong.  They have also lied about the assessments and have colluded to do so.  It's just an example of what employees of the NHS can be like, and some clinicians have a God complex and will try to bat people away.  But my situation is different and your son hasn't been assessed so you won't face the same scenario, just be prepared to go well-informed just in case they do take that attitude.  And you can always say "fine, if you don't recognise the private diagnosis perform one yourselves".

Children
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