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Are the messages about autism compromised?

longman

There have been lots of conflicting claims about the prevalence of autism over the past year. I wonder which messages the Government and health professionals are listening to, and whether the ones sent out by NAS are being countermanded by other claims.

The latest claim in the British Medical Journal is that the increase in diagnosis in the 1990s has levelled off since 2000, and that the yearly diagnosis rate is 3.8 per thousand (compared to popularly held views that it is greater than 10 per thousand, possibly 13).

The study was based on diagnoses each year by the age of 8, but that could be to do with the effectiveness of diagnosis, especially as with recession, and the evidence of parents trying to get their children diagnosed or statemented, whereby there might be a deliberate policy to reduce diagnosis to fudge the statistics. Another study in America suggests a 78% rise between 2002 and 2008, and why wouldn't it surprise me if the UK was trying to pretend things again? 

Who do you believe? And more importantly who do the Government and Health Professionals believe?

Another claim made a year ago in the Journal of Child Psychology and Psychiatry believes children can grow out of autism.  Well we know many GPs hold that view, and it seems to be reinforced from somewhere. The evidence is supposedly that groups receiving strong support show marked improvement in social interaction skills, but that's been known as a short term response to coaching for some time.

Funnily enough you can always get a daft wee bit of research done in the UK, if the money's the right colour, but spend £0.5m on developing training and awareness packages and there's no apparent outcome!

The puzzle with the "grow out of it" research is it has the usual problem with eye contact. It thinks that if conspicuous gaze aversion stops the problem has gone away.

I truly dispair. The two most obvious and persistent factors are poor use of eye contact, preventing assimilation of a wide range of non-verbal cues, and sensory issues/sensory overload. Both are pushed to the back of scientists' minds, the eye contact if it isn't obvious. No-one seems to have explored whether these are key causal factors. That might better explain short-term improvements.

But NAS needs to weigh up whether the messages it is putting out are compromised by contradictory messages coming from sources the professionals, and Government, hold in better respect. Like the British Medical Journal and the Journal of Child Psychology and Psychiatry.

Parents

  • Gosh spot the typos I made when I did that - I usually scan more carefully, but they still get through. My big fingers tend to hit two keys at once.

    Most researchers are presented with difficulties, such as assessing minors, or observing groups without the observer having an effect, or the way in which people can compromise the information they give. It doesn't stop research in other fields getting evidence and more answers.

    A lot of social sciences data gathering involves gauging behaviours which may not be explicit, there's no excuse for not being able to set up controls and procedures. And yes it is difficult to compare individuals with different life patterns.

    Most disciplines find ways round this. They don't ignore key research areas just because they are difficult.

    With autistic spectrum at the abler end, we really are dreadfully short on evidence. There is a growing number of adults on the spectrum, both from late diagnosis and those diagnosed as children growing up.

    The failure to research this area is a shocking neglect, for which there is no excuse, other perhaps than not being able to get the funds. But funds can be directed to an area of need with recognition in the right forums. Is that happening?

    What I've tried to show in this thread and the gaps in research. I wish someone who can influence these matters would act on it or contact those who need to be asked.

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  • Gosh spot the typos I made when I did that - I usually scan more carefully, but they still get through. My big fingers tend to hit two keys at once.

    Most researchers are presented with difficulties, such as assessing minors, or observing groups without the observer having an effect, or the way in which people can compromise the information they give. It doesn't stop research in other fields getting evidence and more answers.

    A lot of social sciences data gathering involves gauging behaviours which may not be explicit, there's no excuse for not being able to set up controls and procedures. And yes it is difficult to compare individuals with different life patterns.

    Most disciplines find ways round this. They don't ignore key research areas just because they are difficult.

    With autistic spectrum at the abler end, we really are dreadfully short on evidence. There is a growing number of adults on the spectrum, both from late diagnosis and those diagnosed as children growing up.

    The failure to research this area is a shocking neglect, for which there is no excuse, other perhaps than not being able to get the funds. But funds can be directed to an area of need with recognition in the right forums. Is that happening?

    What I've tried to show in this thread and the gaps in research. I wish someone who can influence these matters would act on it or contact those who need to be asked.

Children
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