Are the messages about autism compromised?

There have been lots of conflicting claims about the prevalence of autism over the past year. I wonder which messages the Government and health professionals are listening to, and whether the ones sent out by NAS are being countermanded by other claims.

The latest claim in the British Medical Journal is that the increase in diagnosis in the 1990s has levelled off since 2000, and that the yearly diagnosis rate is 3.8 per thousand (compared to popularly held views that it is greater than 10 per thousand, possibly 13).

The study was based on diagnoses each year by the age of 8, but that could be to do with the effectiveness of diagnosis, especially as with recession, and the evidence of parents trying to get their children diagnosed or statemented, whereby there might be a deliberate policy to reduce diagnosis to fudge the statistics. Another study in America suggests a 78% rise between 2002 and 2008, and why wouldn't it surprise me if the UK was trying to pretend things again? 

Who do you believe? And more importantly who do the Government and Health Professionals believe?

Another claim made a year ago in the Journal of Child Psychology and Psychiatry believes children can grow out of autism.  Well we know many GPs hold that view, and it seems to be reinforced from somewhere. The evidence is supposedly that groups receiving strong support show marked improvement in social interaction skills, but that's been known as a short term response to coaching for some time.

Funnily enough you can always get a daft wee bit of research done in the UK, if the money's the right colour, but spend £0.5m on developing training and awareness packages and there's no apparent outcome!

The puzzle with the "grow out of it" research is it has the usual problem with eye contact. It thinks that if conspicuous gaze aversion stops the problem has gone away.

I truly dispair. The two most obvious and persistent factors are poor use of eye contact, preventing assimilation of a wide range of non-verbal cues, and sensory issues/sensory overload. Both are pushed to the back of scientists' minds, the eye contact if it isn't obvious. No-one seems to have explored whether these are key causal factors. That might better explain short-term improvements.

But NAS needs to weigh up whether the messages it is putting out are compromised by contradictory messages coming from sources the professionals, and Government, hold in better respect. Like the British Medical Journal and the Journal of Child Psychology and Psychiatry.

Parents
  • I am really surprised and humbled, as a lot of the time, by longman's analysis of things, as he's taken my thoughts exactly (in this case of FE and HE) but put it into an articulative approach. And he thought nobody looked forward to his responses Tongue Out 

     

    It is just a lot of the time I do not have an articulative answer back.

     

    Intense, I am shocked but not totally surprised that your LA may be doing this, as I too have been thinking that maybe autism isn't as "rare" as it once thought it was. The numbers have been coming down from 1 in 100, to 1 in 80 etc.

     

    Wether this is due to more diagnoses (wethere correct or not) or just more cases coming in more concerntrated areas, is up for debate.

     

    It is curious that provision is somewhat better coordinated or paied a little bit more attention to at children's level, through parents partnerships etc but not so much at adult level. I am not trying to make whooping generalisation but it does seems this way, at least on paper, no doubt by due in some regards by the autism is in children only mantra. Erm...don't these kids grow up!

     

    Longman's analysis seems true for the most part in my limited knowledge of the science field, as I want to go into it too but not medical/psychology. I personally find it revolting that your peers review your work, when they may not be experts in the field or may hold their own prejudices about you, the work or anything else for that matter and this is before we get to the publishing houses of these journals, which bottles down to making money and getting the best reputation for themselves and increasing revenues.

     

     

    Anyway that was my views.

    urspecial

Reply
  • I am really surprised and humbled, as a lot of the time, by longman's analysis of things, as he's taken my thoughts exactly (in this case of FE and HE) but put it into an articulative approach. And he thought nobody looked forward to his responses Tongue Out 

     

    It is just a lot of the time I do not have an articulative answer back.

     

    Intense, I am shocked but not totally surprised that your LA may be doing this, as I too have been thinking that maybe autism isn't as "rare" as it once thought it was. The numbers have been coming down from 1 in 100, to 1 in 80 etc.

     

    Wether this is due to more diagnoses (wethere correct or not) or just more cases coming in more concerntrated areas, is up for debate.

     

    It is curious that provision is somewhat better coordinated or paied a little bit more attention to at children's level, through parents partnerships etc but not so much at adult level. I am not trying to make whooping generalisation but it does seems this way, at least on paper, no doubt by due in some regards by the autism is in children only mantra. Erm...don't these kids grow up!

     

    Longman's analysis seems true for the most part in my limited knowledge of the science field, as I want to go into it too but not medical/psychology. I personally find it revolting that your peers review your work, when they may not be experts in the field or may hold their own prejudices about you, the work or anything else for that matter and this is before we get to the publishing houses of these journals, which bottles down to making money and getting the best reputation for themselves and increasing revenues.

     

     

    Anyway that was my views.

    urspecial

Children
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