Are the messages about autism compromised?

There have been lots of conflicting claims about the prevalence of autism over the past year. I wonder which messages the Government and health professionals are listening to, and whether the ones sent out by NAS are being countermanded by other claims.

The latest claim in the British Medical Journal is that the increase in diagnosis in the 1990s has levelled off since 2000, and that the yearly diagnosis rate is 3.8 per thousand (compared to popularly held views that it is greater than 10 per thousand, possibly 13).

The study was based on diagnoses each year by the age of 8, but that could be to do with the effectiveness of diagnosis, especially as with recession, and the evidence of parents trying to get their children diagnosed or statemented, whereby there might be a deliberate policy to reduce diagnosis to fudge the statistics. Another study in America suggests a 78% rise between 2002 and 2008, and why wouldn't it surprise me if the UK was trying to pretend things again? 

Who do you believe? And more importantly who do the Government and Health Professionals believe?

Another claim made a year ago in the Journal of Child Psychology and Psychiatry believes children can grow out of autism.  Well we know many GPs hold that view, and it seems to be reinforced from somewhere. The evidence is supposedly that groups receiving strong support show marked improvement in social interaction skills, but that's been known as a short term response to coaching for some time.

Funnily enough you can always get a daft wee bit of research done in the UK, if the money's the right colour, but spend £0.5m on developing training and awareness packages and there's no apparent outcome!

The puzzle with the "grow out of it" research is it has the usual problem with eye contact. It thinks that if conspicuous gaze aversion stops the problem has gone away.

I truly dispair. The two most obvious and persistent factors are poor use of eye contact, preventing assimilation of a wide range of non-verbal cues, and sensory issues/sensory overload. Both are pushed to the back of scientists' minds, the eye contact if it isn't obvious. No-one seems to have explored whether these are key causal factors. That might better explain short-term improvements.

But NAS needs to weigh up whether the messages it is putting out are compromised by contradictory messages coming from sources the professionals, and Government, hold in better respect. Like the British Medical Journal and the Journal of Child Psychology and Psychiatry.

Parents
  • It's not only FE that is diabolical with money.  Apparently schools don't always spend their SEN funding on SEN provision either.  And apparently there is nothing the LA can do to force them to from what I have read.

    This is what I have read elsewhere written by a former school governor:

    "Other than the amounts agreed in a statement not one penny is ring fenced for SEN it is at the whim of the headteacher and the only accountability is from untrained Governors. There is a guideline agreed this year (for the first time) by the school forum. However the LA would not actually enforce or monitor this because it is a voluntary guide.

    The LA, Ofsted and DofE should get involved if Governors are not fulfilling their statutory duties in this area and/or there are exclusions but in practice they would look the other way if the school does well with non SEN students. GAP data is highlighted more for Free School Meals.

    Schools are encouraged to carry forward some money each year and if the carry forward is not increasing then technically the whole budget has been spent. This means that for the year it is a £700,000 under spend (still a lot in hard times) Whether it is on SEN is highly complicated with, in my experience, Governors, Headteachers and the LA not actually knowing what should be included in this spend.

    In short the whole system relies on Headteachers and Governors being passionate enough to fund SEN. If they only care about results many would use money on other students where they may perceive more bang for their bucks."

    I even read in the same place, that "in one case a HT did not realise that he/she was supposed to devolve the SEN budget, with the result that there wasn't one until this was eventually realised and set straight by the council. Terrifying."

    Another person revealed that the local Parent Partnership stated:

    "A parent raised a concern about the amount of underspend (or carry forward) schools currently have (£7 million as of March 2013) which I believe is c5% of the DSG."

    Someone also asked:

    "Oughtn't there be clarity, such as a list of schools who have under spent/not spent their SEN budgets in 2012 - 2013 and could managers give an account for any under spend?

    Are Head teachers free to spend their budgets how they wish? if so how and to whom are schools accountable?  Does the LA have powers to check how school budgets are being spent?"

    It is all about lack of accountability and nothing being policed.  Just like, as you say Longman, the Autism Strategy.

Reply
  • It's not only FE that is diabolical with money.  Apparently schools don't always spend their SEN funding on SEN provision either.  And apparently there is nothing the LA can do to force them to from what I have read.

    This is what I have read elsewhere written by a former school governor:

    "Other than the amounts agreed in a statement not one penny is ring fenced for SEN it is at the whim of the headteacher and the only accountability is from untrained Governors. There is a guideline agreed this year (for the first time) by the school forum. However the LA would not actually enforce or monitor this because it is a voluntary guide.

    The LA, Ofsted and DofE should get involved if Governors are not fulfilling their statutory duties in this area and/or there are exclusions but in practice they would look the other way if the school does well with non SEN students. GAP data is highlighted more for Free School Meals.

    Schools are encouraged to carry forward some money each year and if the carry forward is not increasing then technically the whole budget has been spent. This means that for the year it is a £700,000 under spend (still a lot in hard times) Whether it is on SEN is highly complicated with, in my experience, Governors, Headteachers and the LA not actually knowing what should be included in this spend.

    In short the whole system relies on Headteachers and Governors being passionate enough to fund SEN. If they only care about results many would use money on other students where they may perceive more bang for their bucks."

    I even read in the same place, that "in one case a HT did not realise that he/she was supposed to devolve the SEN budget, with the result that there wasn't one until this was eventually realised and set straight by the council. Terrifying."

    Another person revealed that the local Parent Partnership stated:

    "A parent raised a concern about the amount of underspend (or carry forward) schools currently have (£7 million as of March 2013) which I believe is c5% of the DSG."

    Someone also asked:

    "Oughtn't there be clarity, such as a list of schools who have under spent/not spent their SEN budgets in 2012 - 2013 and could managers give an account for any under spend?

    Are Head teachers free to spend their budgets how they wish? if so how and to whom are schools accountable?  Does the LA have powers to check how school budgets are being spent?"

    It is all about lack of accountability and nothing being policed.  Just like, as you say Longman, the Autism Strategy.

Children
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