Are the messages about autism compromised?

There have been lots of conflicting claims about the prevalence of autism over the past year. I wonder which messages the Government and health professionals are listening to, and whether the ones sent out by NAS are being countermanded by other claims.

The latest claim in the British Medical Journal is that the increase in diagnosis in the 1990s has levelled off since 2000, and that the yearly diagnosis rate is 3.8 per thousand (compared to popularly held views that it is greater than 10 per thousand, possibly 13).

The study was based on diagnoses each year by the age of 8, but that could be to do with the effectiveness of diagnosis, especially as with recession, and the evidence of parents trying to get their children diagnosed or statemented, whereby there might be a deliberate policy to reduce diagnosis to fudge the statistics. Another study in America suggests a 78% rise between 2002 and 2008, and why wouldn't it surprise me if the UK was trying to pretend things again? 

Who do you believe? And more importantly who do the Government and Health Professionals believe?

Another claim made a year ago in the Journal of Child Psychology and Psychiatry believes children can grow out of autism.  Well we know many GPs hold that view, and it seems to be reinforced from somewhere. The evidence is supposedly that groups receiving strong support show marked improvement in social interaction skills, but that's been known as a short term response to coaching for some time.

Funnily enough you can always get a daft wee bit of research done in the UK, if the money's the right colour, but spend £0.5m on developing training and awareness packages and there's no apparent outcome!

The puzzle with the "grow out of it" research is it has the usual problem with eye contact. It thinks that if conspicuous gaze aversion stops the problem has gone away.

I truly dispair. The two most obvious and persistent factors are poor use of eye contact, preventing assimilation of a wide range of non-verbal cues, and sensory issues/sensory overload. Both are pushed to the back of scientists' minds, the eye contact if it isn't obvious. No-one seems to have explored whether these are key causal factors. That might better explain short-term improvements.

But NAS needs to weigh up whether the messages it is putting out are compromised by contradictory messages coming from sources the professionals, and Government, hold in better respect. Like the British Medical Journal and the Journal of Child Psychology and Psychiatry.

Parents
  • If you "grow out of Autism", you don't have it in the first place. As children, you see how NTs act in certain situations and I guess many try to fit in / copy what the NTs are doing. Some also develop coping mechanisms to learn to deal with stressfull situations.

    When I asked about a diagnosis last year, I was seen by a junior doctor who didn't quite know what to do with me. (He only knew what to do with children who were believed to be on the spectrum) He also mentioned something about how I may not even get funding for a diagnosis.

    It's disgusting.  No matter what the NAS pushes for, this underhand, snide and suspicious attitude is always going to mean many families with autistic children do not get support because there is an ulterior motive.  And yes, it's about money.

    I've heard this argument again and again in adult further education. Yet, another college were able to provide the support that the other college couldn't. I'm not sure if that was because the colleges were in different counties. But the impression I got was "we can't be bothered". I was also informed by someone who works with disabled adults in higher education, that there is funding. But it seems that the college just couldn't be bothered.

Reply
  • If you "grow out of Autism", you don't have it in the first place. As children, you see how NTs act in certain situations and I guess many try to fit in / copy what the NTs are doing. Some also develop coping mechanisms to learn to deal with stressfull situations.

    When I asked about a diagnosis last year, I was seen by a junior doctor who didn't quite know what to do with me. (He only knew what to do with children who were believed to be on the spectrum) He also mentioned something about how I may not even get funding for a diagnosis.

    It's disgusting.  No matter what the NAS pushes for, this underhand, snide and suspicious attitude is always going to mean many families with autistic children do not get support because there is an ulterior motive.  And yes, it's about money.

    I've heard this argument again and again in adult further education. Yet, another college were able to provide the support that the other college couldn't. I'm not sure if that was because the colleges were in different counties. But the impression I got was "we can't be bothered". I was also informed by someone who works with disabled adults in higher education, that there is funding. But it seems that the college just couldn't be bothered.

Children
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