Published on 12, July, 2020
Hi All
I really need some help! My 19 year old has had physical health issues for years but we are getting nowhere with finding out what is causing them. The varying ailments are; chest pains, stomach pains, diarrhoea, raising heart (up to 210bpm), extreme tiredness.
She has had so many tests and even a few surgeries but the doctors find nothing. They are now suggesting Munchausen Syndrome! I know there is more to this than that.
Has anyone else had experience of this or can recommend any private medical professionals who may be able to help?
Firstly I'm no medical professional.
Based upon what I've read there appears to be a strong correlation between autism and Ehlers-Danlos Syndromes (EDS). One of the conditions linked to EDS is Postural Orthostatic Tachycardia Syndrome (POTS).
The symptoms listed do seem similar to those experienced by your daughter:
https://www.potsuk.org/about-pots/symptoms/
https://www.nhs.uk/conditions/postural-tachycardia-syndrome/
It’s so interesting you should say about POTS as this is something they have queried and we keep asking for it to be followed up. It’s really helpful to have someone else mention it as well. Thank you.