Nobody cares about me. Nobody wants to help me.

Nobody’s interested in helping me. Not even people who are paid to help me!

I was assessed as needing 8 hours of support per week back in 2004 by social services. They’ve never provided 8 hours a week; since then they’ve provided a support worker 4 times and then stopped the support within 6 months and not told me why. And now they’re telling me if I arrange my own support worker they won’t even pay for it.

I’ve been trying for years to arrange my own support worker, and a lot of the support worker companies just ignore my e-mails, and my communication skills aren’t good enough to phone them.

My doctor won’t phone them for me.

The NHS won’t help me. I was referred to a hospital because I’m suicidal and lonely and depressed, and they did nothing for me; they wouldn’t even help me make friends or listen to me when I asked for help with anything.

I had an advocacy worker recently, who did more or less nothing to help me.

And complaining doesn’t get me anywhere! I complained about the advocacy worker, and they just lied and told me he’d helped me with all my issues, but refused to tell me who he’d (supposedly) contacted and what response he’d had etc.  I complained about social services, and was told my social worker had been doing her job properly, and refused to answer questions such as How can she have been doing her job properly when she said she was going to help me and also doing her job properly when she refused to give me the help she said she was going to give me? I complained about the NHS in April 2022, about things that had been happening in February 2022, and was told that they couldn’t consider my complaint because I had to complain within a year of it happening, and then just ignored my e-mail asking how that wasn’t within a year!

And no one I know personally helps me. Everybody except 1 person just ignores my e-mails, and the only person that doesn’t ignore me won’t help me find social opportunities, won’t help me find a support worker, won’t help me find out about flights to Zambia to meet someone I’ve got to know online, and then acts all offended when I say she doesn’t care about  me much!

I can’t find anyone who cares about me!

  • I'm so sorry that you have been treated this way.

    Sadly this is the case for a lot of people with autism. Most of the support out there is for children, adults get little to no support and help.

    This community seems like an understanding and supportive environment so I would suggest you stay here for a time and see if anyone can help you.

    I would suggest you contact Citizens Advice and see if they can advise you on what best to do and where you can find the right support for you. I did this once before and they helped me get support for my own problems.

    https://www.citizensadvice.org.uk/about-us/contact-us/contact-us/contact-us/

    Your Dr doesn't sound the best so if at all possible try to get a different Dr. It took me three Dr's before I found one who was understanding of my autism and difficulties.

    You deserve to be heard and supported. Don't let anyone convince you otherwise.