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Is it worth pushing for a second opinion

SB

My 7 year old son was assessed today. No diagnosis of ASD or ADHD. They say they would like to do further observations and will request his school to get the Ed Pysch to do an observation.

Where does this leave us, I am not in agreement with the professionals. My son is very articulate but has sensory issues, social interaction issues, anxiety issues which impact on his physical health and behaviour issues. If they have ruled out ASD and ADHD what else could they be looking for from further observations.

I was certain he would get a diagnosis now I am feeling totally confused. I don't have much fight left in me.

Is it common for you to go through several assessments before you get a diagnosis should I be requesting a second opinion, if so, how?

 

 

 

Parents

  • I don't trust Educational Psychologists after I listened to the opinion of our one 4 years ago, when he said he didn't see any signs of AS in my daughter.  He didn't rule out an assessment being a possibility but his report made it clear he was of the opinion that she didn't have it, the way he gave a list of stereotyped examples that he saw no sign of an AS style reaction to and explained away her individual reactions with other reasons.  I trusted them and now have a daughter aged 12 who definitely has AS and is in denial whilst she is suffering terribly at school.  We are awaiting a 2nd opinion at a specialist clinic, which I demanded BTW.  Our CAMHS failed to diagnose her.  CAMHS just doesn't have ASC expertise and I have heard so many bad stories about them.

    You request a second opinion via your GP.  You explain what happened, tell him/her that you are dissatisfied with the outcome of the assessment you had and you have very good reason to believe your son does have an ASC and that he needs further investigation by a specialist centre.

    BTW if they used the ADOS on your son, I researched on it's clinical reliability and it's only 77% reliable as it was researched on classic clases of autism and therefore it is not very good at identifying high-functioning cases.

    When you start to flag, and feel it's all too tough to fight, remember this is your son and you are fighting for what he needs and what he deserves.

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  • I don't trust Educational Psychologists after I listened to the opinion of our one 4 years ago, when he said he didn't see any signs of AS in my daughter.  He didn't rule out an assessment being a possibility but his report made it clear he was of the opinion that she didn't have it, the way he gave a list of stereotyped examples that he saw no sign of an AS style reaction to and explained away her individual reactions with other reasons.  I trusted them and now have a daughter aged 12 who definitely has AS and is in denial whilst she is suffering terribly at school.  We are awaiting a 2nd opinion at a specialist clinic, which I demanded BTW.  Our CAMHS failed to diagnose her.  CAMHS just doesn't have ASC expertise and I have heard so many bad stories about them.

    You request a second opinion via your GP.  You explain what happened, tell him/her that you are dissatisfied with the outcome of the assessment you had and you have very good reason to believe your son does have an ASC and that he needs further investigation by a specialist centre.

    BTW if they used the ADOS on your son, I researched on it's clinical reliability and it's only 77% reliable as it was researched on classic clases of autism and therefore it is not very good at identifying high-functioning cases.

    When you start to flag, and feel it's all too tough to fight, remember this is your son and you are fighting for what he needs and what he deserves.

Children
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