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Is it worth pushing for a second opinion

SB

My 7 year old son was assessed today. No diagnosis of ASD or ADHD. They say they would like to do further observations and will request his school to get the Ed Pysch to do an observation.

Where does this leave us, I am not in agreement with the professionals. My son is very articulate but has sensory issues, social interaction issues, anxiety issues which impact on his physical health and behaviour issues. If they have ruled out ASD and ADHD what else could they be looking for from further observations.

I was certain he would get a diagnosis now I am feeling totally confused. I don't have much fight left in me.

Is it common for you to go through several assessments before you get a diagnosis should I be requesting a second opinion, if so, how?

 

 

 

Parents

  • Hi SB,

    I thought I would just tell you my story because I was put off going for a second opinion for a very long time. 

    My son recieved a full diagnosis earlier this week.  He is 6 years old and I have been fighting for 3 and a half years to have it recognised.  We were very let down by our local service and were lucky enough to get a referral to a centre of excellence.  They were shocked that I had had to fight for a diagnosis as they considered his problems to be very apparent and  quite severe. 

    Over the last 3+ years he has had countless assessments and observations all of which pointed towards ASD but always with the same outcome of 'let's wait and see'.  I am not saying this to undermine your faith in the service which you are getting because for all I know, they are great.  However, I was certain my son had ASD and no-one was taking action.  By all means, carry on in the system you are in to see what the outcome is but don't be afraid to insist on a second opinion when the time comes.  I think too many people are put off by a varity of factors.  Don't worry about offending your doctor - they should understand the importance of getting another opinion.  And don't be put off by people arguing over the cost of referring out of area either. 

    I hope that helps a little and I wish you all the best.

Reply

  • Hi SB,

    I thought I would just tell you my story because I was put off going for a second opinion for a very long time. 

    My son recieved a full diagnosis earlier this week.  He is 6 years old and I have been fighting for 3 and a half years to have it recognised.  We were very let down by our local service and were lucky enough to get a referral to a centre of excellence.  They were shocked that I had had to fight for a diagnosis as they considered his problems to be very apparent and  quite severe. 

    Over the last 3+ years he has had countless assessments and observations all of which pointed towards ASD but always with the same outcome of 'let's wait and see'.  I am not saying this to undermine your faith in the service which you are getting because for all I know, they are great.  However, I was certain my son had ASD and no-one was taking action.  By all means, carry on in the system you are in to see what the outcome is but don't be afraid to insist on a second opinion when the time comes.  I think too many people are put off by a varity of factors.  Don't worry about offending your doctor - they should understand the importance of getting another opinion.  And don't be put off by people arguing over the cost of referring out of area either. 

    I hope that helps a little and I wish you all the best.

Children
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