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Diagnosis update

ralphtown

Well,I think this is my 4th post in this forum.

hopefully it might inspire those having trouble getting diagnosis or having problems finding their way thru...don,t give up folks :)

 

I have 4 kids am a 51 year old male(just had my birthday).

3 out of 4 "suffer" with ASD.

Eldest Son has dyslexia and other issues but never been diagnosed.

youngest Son has Aspergus and has been given full diagnosis.

youngest Daughter has all the symptoms of Aspergus,has had a diagnosis of depression,ADHD and low self esteem.Also has communication issues.

 

So.

Where did it all come from.Who is to "blame"?

Well,I had an idea that it might be me.

I went to my doctor who was a little less than helpful,so I called the NAS helpline.

They gave me a few pointers and I went back to the doctor with all the info sent to me by email from NAS.

 

after getting just a little "eggy" with my doctor,who told me I did,nt look like I had Aspergus,I finally got an appointment with the Autism unit at the reasonably local adult mental unit.

 

Last week I met with a lovely lady and have started the diagnosis process.

Its taken 51 years but HEY!

we,re on the way.

i,ve had a copy of a letter sent to my GP saying that further investigation is warrented.Read that as you like but I think,they think,I have an issue...or a million.

 

Bottom line...DON,T GIVE UP!!

If its you or your child that you have concerns about,KEEP DIGGING.

You have to complain,kick doors down,write to MPs...whatever.

There seems to be a certain feeling of closure,a feeling that I might finally discover why I,ve felt like a round peg in a square hole all my life.

It feels almost like some sort of religious experience.

Like the feeling you get when you go over the top on a roller coaster.

its a bit scary but its putting a smile on my face and I,ve not had one of those for decades.

RALPH.

Parents

  • Hi Ralph,

     

    Just wanted to wish you well, I also have 4 kids with different special needs my youngest is hyperactive, the next had hearing and communication issues then my second eldest was diagnosed with myeres irlene  and my eldest has aspergers and dyspraxia.

    My eldest has been under the care of peaditric doctors, physios and OT's all his life he has had speech therapy in the past as well. He was diagnosed with dyspraxia, developmental delay, hypotonia etc by the time he was 4 but because he was thought to be clever with physical dissabilities they missed Aspergers until I broke down in tears in the peadiatrics office when he was 15. (yes it was very embarassing first time id broken in public but boy im glad i did) The Doc turned to me and said i was describing a teenager with aspergers not  a kid with dyspraxia and that we needed this tested because this was something extra on top of his other problems.

    Long story short 20 MONTHS later my son finally got a confirmed diagnosis last week. I felt awful through all the testing and the relief when he was diagnosed was huge but then the guilt kicked in when i realised i was happy my son had aspergers. it took a few days to work out i wasnt happy he had aspergers i was happy that now i could talk to people who understood and get him the help he needs after all this time.

     

    This was supposed to be a happy positive post all im trying to say is hang in there, its worth it in the end.

     

    Sam

     

Reply

  • Hi Ralph,

     

    Just wanted to wish you well, I also have 4 kids with different special needs my youngest is hyperactive, the next had hearing and communication issues then my second eldest was diagnosed with myeres irlene  and my eldest has aspergers and dyspraxia.

    My eldest has been under the care of peaditric doctors, physios and OT's all his life he has had speech therapy in the past as well. He was diagnosed with dyspraxia, developmental delay, hypotonia etc by the time he was 4 but because he was thought to be clever with physical dissabilities they missed Aspergers until I broke down in tears in the peadiatrics office when he was 15. (yes it was very embarassing first time id broken in public but boy im glad i did) The Doc turned to me and said i was describing a teenager with aspergers not  a kid with dyspraxia and that we needed this tested because this was something extra on top of his other problems.

    Long story short 20 MONTHS later my son finally got a confirmed diagnosis last week. I felt awful through all the testing and the relief when he was diagnosed was huge but then the guilt kicked in when i realised i was happy my son had aspergers. it took a few days to work out i wasnt happy he had aspergers i was happy that now i could talk to people who understood and get him the help he needs after all this time.

     

    This was supposed to be a happy positive post all im trying to say is hang in there, its worth it in the end.

     

    Sam

     

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