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Diagnosis update

ralphtown

Well,I think this is my 4th post in this forum.

hopefully it might inspire those having trouble getting diagnosis or having problems finding their way thru...don,t give up folks :)

 

I have 4 kids am a 51 year old male(just had my birthday).

3 out of 4 "suffer" with ASD.

Eldest Son has dyslexia and other issues but never been diagnosed.

youngest Son has Aspergus and has been given full diagnosis.

youngest Daughter has all the symptoms of Aspergus,has had a diagnosis of depression,ADHD and low self esteem.Also has communication issues.

 

So.

Where did it all come from.Who is to "blame"?

Well,I had an idea that it might be me.

I went to my doctor who was a little less than helpful,so I called the NAS helpline.

They gave me a few pointers and I went back to the doctor with all the info sent to me by email from NAS.

 

after getting just a little "eggy" with my doctor,who told me I did,nt look like I had Aspergus,I finally got an appointment with the Autism unit at the reasonably local adult mental unit.

 

Last week I met with a lovely lady and have started the diagnosis process.

Its taken 51 years but HEY!

we,re on the way.

i,ve had a copy of a letter sent to my GP saying that further investigation is warrented.Read that as you like but I think,they think,I have an issue...or a million.

 

Bottom line...DON,T GIVE UP!!

If its you or your child that you have concerns about,KEEP DIGGING.

You have to complain,kick doors down,write to MPs...whatever.

There seems to be a certain feeling of closure,a feeling that I might finally discover why I,ve felt like a round peg in a square hole all my life.

It feels almost like some sort of religious experience.

Like the feeling you get when you go over the top on a roller coaster.

its a bit scary but its putting a smile on my face and I,ve not had one of those for decades.

RALPH.

Parents

  • Yes, you must never give up. I was diagnosed with AS two years ago, age 21. I had to fight  against the mental health team's intransigence, but it paid off and I got referred to a specialist NHS diagnostic centre. Having a diagnosis is a tremendous help. I now also, for the first time, have made some friends, with other young adults who have AS, and I feel more included and at peace with myself. It would have been far better if I was diagnosed as a child, but one can only go forwards.

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  • Yes, you must never give up. I was diagnosed with AS two years ago, age 21. I had to fight  against the mental health team's intransigence, but it paid off and I got referred to a specialist NHS diagnostic centre. Having a diagnosis is a tremendous help. I now also, for the first time, have made some friends, with other young adults who have AS, and I feel more included and at peace with myself. It would have been far better if I was diagnosed as a child, but one can only go forwards.

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