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Autism and Migraines?

PetitePip

I've been suffering from hormonal migraines (every month) for a couple of years now. On top of these, I've always had a tendency to get migraines when I feel too much emotion positive or negative. I've had them after my graduation  (positive) and after what I now recognise are meltdowns (negative). 

I've been struggling to find much information online about links between autism and Migraines and I wondered whether anyone else had similar experiences? 

Thanks!

Parents

  • Sorry to hear you're suffering with this.

    I get the same, it can be very debilitating and uncomfortable. GP may be able to help or over the counter meds can sometimes help as well.

    Sadly like with IBS there is a link between autism and migraines, so we are more likely to suffer from them.

  • in reply to Claire

    Thank you for sharing, Claire and I'm sorry to hear that you're also suffering with this. I'm using the MigraineBuddy app to keep a record of my 'attacks' so that I can have informed discussions with my GP. I'd recommend using it if you don't, it's free and allows you to add in triggers, duration, where the pain is, intensity, amongst other things. I can never remember how many 'attacks' I have so it's been really useful to keep an accurate record. 

    I'm on month 3 of trialling a new preventative medication for migraines but I'm starting to wonder whether my Autism/ADHD would make it less effective. Once I've had my initial referral appointment with my GP I'm definitely going to discuss the potential link to see if there is a different stream of medication that I should be on. 

    What I find especially interesting on reflection is that my migraines started triggering with intensity when the oral contraceptive pill that I had been on for over 10 years (from the age of 16-26) was suddenly discontinued. I was moved to a different, 'equitable' version, but ever since then I had a massive increase in migraines. I think that this sudden change, without my consultation (I literally had no warning, I just picked up my prescription one day and it had changed) caused a large bought of stress. I also think my body had adapted to the routine of that very specific medication and everything in it from my adolescent and wasn't handling moving to something else without preparation. I'm only now acclimatising to a different form of contraception but I still think that my migraines haven't felt the same since. 

Reply
  • in reply to Claire

    Thank you for sharing, Claire and I'm sorry to hear that you're also suffering with this. I'm using the MigraineBuddy app to keep a record of my 'attacks' so that I can have informed discussions with my GP. I'd recommend using it if you don't, it's free and allows you to add in triggers, duration, where the pain is, intensity, amongst other things. I can never remember how many 'attacks' I have so it's been really useful to keep an accurate record. 

    I'm on month 3 of trialling a new preventative medication for migraines but I'm starting to wonder whether my Autism/ADHD would make it less effective. Once I've had my initial referral appointment with my GP I'm definitely going to discuss the potential link to see if there is a different stream of medication that I should be on. 

    What I find especially interesting on reflection is that my migraines started triggering with intensity when the oral contraceptive pill that I had been on for over 10 years (from the age of 16-26) was suddenly discontinued. I was moved to a different, 'equitable' version, but ever since then I had a massive increase in migraines. I think that this sudden change, without my consultation (I literally had no warning, I just picked up my prescription one day and it had changed) caused a large bought of stress. I also think my body had adapted to the routine of that very specific medication and everything in it from my adolescent and wasn't handling moving to something else without preparation. I'm only now acclimatising to a different form of contraception but I still think that my migraines haven't felt the same since. 

Children
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