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10 months for camhs assesment?!?

NAS11046

My son who is nearly 5 was refered to camhs for an ASD assessment in may this year after a lot of time wasting by the community paed dr, she told me that it could be up to 6 months waiting time, so I prepared myself and focused on having a diagnosis for the end of the year. 

After 4 months waiting and not hearing anything I decided to call camhs, they took some details and said they would call me back, the next day when I got in from work I had a message that an appoitment had been made for 4th March 2014, 10 months since he was referred. 

I was soo angry and disappointed! I feel that 10 months waiting for an appointment is just ridiculous! 

What is everyone else's experience? Does 10 months sound right? Any advice would be great! 

I live in east renfrewshire, Scotland, and its the Renfrew Camhs, that we have been referred to. 

Im just getting realy stressed out now about the whole situation, and now still got another 6 months to wait till march! It's driving me crazy! 

Parents

  • I have only ever read of one person saying they had a good experience with CAMHS.  99% of people complain at how crap they are.  My local CAMHS has no autism expertise whatsoever, and just trained junior clinical staff to do the ADOS-2 like a tick-box exercise.  It's appalling.  Sadly, your experience doesn't surprise me.

    Complain to NHS PALS if your CAMHS won't play ball, but first give them the opportunity to rectify the situation by putting everything you want in writing and pointing out their shortcomings.  Address is to the manager of CAMHS, call to find out his/her name.

    The NHS is a disgrace.  Even our local CDC who diagnosed my youngest, said to me whilst I was in the depths of despair with her behaviour "what is it you think you are going to get once you get a diagnosis?".  That just about sums it up.

    I think the NAS should specifically address CAMHS failings UK-wide as a priority.  All CAMHS clinicians and managers should be made to compulsorily attend ASC training and be made to keep up-to-date on research and developments to maintain ASC awareness of the variety of presentations.

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  • I have only ever read of one person saying they had a good experience with CAMHS.  99% of people complain at how crap they are.  My local CAMHS has no autism expertise whatsoever, and just trained junior clinical staff to do the ADOS-2 like a tick-box exercise.  It's appalling.  Sadly, your experience doesn't surprise me.

    Complain to NHS PALS if your CAMHS won't play ball, but first give them the opportunity to rectify the situation by putting everything you want in writing and pointing out their shortcomings.  Address is to the manager of CAMHS, call to find out his/her name.

    The NHS is a disgrace.  Even our local CDC who diagnosed my youngest, said to me whilst I was in the depths of despair with her behaviour "what is it you think you are going to get once you get a diagnosis?".  That just about sums it up.

    I think the NAS should specifically address CAMHS failings UK-wide as a priority.  All CAMHS clinicians and managers should be made to compulsorily attend ASC training and be made to keep up-to-date on research and developments to maintain ASC awareness of the variety of presentations.

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