Very confused by the lack of Communication from professionals!

Hello and here goes my first ever post on this topic.

Just a tiny bit of history, my twins were born extremely prematurely and were being seen by consultants at hospital for 2 years. Then referred to community paediactric team where my daughter was discharged age 3, my son continued to be monitored for speech delay.

Age 2.5 years I really started to notice previous ''quirky'' ways seemed to be affectioning the way he was developing. At the 3 year app the paed asked me if i had concerns, I have no idea where the word even came from but i said said ''autism, I think he has autism''. She nodded and said we will keep monitoring and assesing but don't worry.

To cut a very long story short he was seen by SALT and then we went back to pead at that stage we were told ''we are def looking at a diagnoses of autism'' at that stage although i felt very sad there was a wave of relief also. Paed said one more SALT assesment and we will get you back in for ''formal diagnoses'' shortly after.

My son was observed by SALT at Playschool and home and lots of games played with him (assesments I am sure) I was promised i would get a call to explain results and observations and the call never came, no report of anything from those assesments or tests. We were then called back to the Paeds office only to be told ''we cannot diagnose autism at this stage, we will see you after christmas after his first term in school''

And that was that, my jaw must have hit the floor as i was told this is what the diagnoses is and now thats chnaged, i did have a few tears as i explained to the paed this goes against every mothers instinct in my body.

Is this normal for the diagnoses process? Never did get the call from SALT nor a report and that was 6 months ago.

Any advise on this would be so greatly appreciated, i feel so bewildered by the lack of communication with the ''proffesional'' involved Undecided

 

 

Parents
  • Hi - yes keep on pushing.  I suspect, and it's only a suspicion as I can't prove anything, that diagnosis is taking longer in some areas of the country to save money.  Even if it can be delayed a year, then that's a help to their budget but no help to you, quite the reverse.   Have a look on the home page for advice.  Also there's a site called ipsea which deals with educational matters.  A friend of mine used and she sd it was helpful when she was arguing with the school.  There's a lesson we shd all remember :  sometimes staff are economical with the truth, whether it's support staff for children/adults or school staff.  A good organisation will tell it as it is.  A good organisation shd also understand your child and how autism affects him/her as an individual.  Anything less just isn't good enough.  

Reply
  • Hi - yes keep on pushing.  I suspect, and it's only a suspicion as I can't prove anything, that diagnosis is taking longer in some areas of the country to save money.  Even if it can be delayed a year, then that's a help to their budget but no help to you, quite the reverse.   Have a look on the home page for advice.  Also there's a site called ipsea which deals with educational matters.  A friend of mine used and she sd it was helpful when she was arguing with the school.  There's a lesson we shd all remember :  sometimes staff are economical with the truth, whether it's support staff for children/adults or school staff.  A good organisation will tell it as it is.  A good organisation shd also understand your child and how autism affects him/her as an individual.  Anything less just isn't good enough.  

Children
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