To routine or not to routine?

So us folks with Autism are supposed to be sticklers for routine. I found this a hard subject to discuss when I was being assessed because having no idea that I was autistic I never viewed my life as being made up of routines. For instance I don’t clean my teeth at the same time every day or have to puff up the cushions before I go to bed. However, what I do notice is that if something familiar in my life stops or changes then I find it hard to maintain my day to day activity. As an example, during the pandemic the religious meetings which I had been attending in person since childhood, and attended because I wanted to, was moved to Zoom. Initially I was good at attending via Zoom but this gradually dropped off. Now I have the opportunity to go back to these in person meetings and I am really struggling. I sometimes wonder if inactivity can of itself become a routine. Another example, on a cold night I hop into bed with all my clothes on but then I have a job to break that routine so my new routine becomes clothes left on for weeks until they begin to look grimy and I start to smell. This is not agreeable to me at all but this inactivity seems to become my new routine.

would anyone else say that they experience no routine as their new routine. It upsets and frustrates me that I seem incapable of breaking these negative and self destructive habits. I would appreciate input and if possible advice on this problem.

Parents
  • One small recommendation of mine would be to buy an electric blanket and put it on 30 mins before bed. I got one for Christmas and it’s been a revelation. I now get into bed in shorts rather than thicker clothes which meant I used to wake up in the night boiling hot. 

Reply
  • One small recommendation of mine would be to buy an electric blanket and put it on 30 mins before bed. I got one for Christmas and it’s been a revelation. I now get into bed in shorts rather than thicker clothes which meant I used to wake up in the night boiling hot. 

Children
  • I appreciate some people aren't as "foldable" as myself, but for those who are:

    For as long as I can remember, when faced with a cold bed I get in and curl myself up into a tight ball under the duvet with my knees and legs on the bottom and my spine facing upwards, that's the fastest way to get warm. Once back up to a workable temperature, I slowly expand into the rest of the available space. 

    This actually worked like gangbusters for me when I arrived at a campsite in the pouring rain on my motorcycle at 01:30 to find that my panniers had become porous and my sleeping bag was saturated at the lower 2/3. It took me a considerable amount of time to "own that space", and the first half hour was pretty rough, but it solved the problem all right.  

  • Same, although I use a hot water bottle. It gets rejected at some point during the night, presumably when I start overheating, because I find it outside the duvet in the morning