To routine or not to routine?

So us folks with Autism are supposed to be sticklers for routine. I found this a hard subject to discuss when I was being assessed because having no idea that I was autistic I never viewed my life as being made up of routines. For instance I don’t clean my teeth at the same time every day or have to puff up the cushions before I go to bed. However, what I do notice is that if something familiar in my life stops or changes then I find it hard to maintain my day to day activity. As an example, during the pandemic the religious meetings which I had been attending in person since childhood, and attended because I wanted to, was moved to Zoom. Initially I was good at attending via Zoom but this gradually dropped off. Now I have the opportunity to go back to these in person meetings and I am really struggling. I sometimes wonder if inactivity can of itself become a routine. Another example, on a cold night I hop into bed with all my clothes on but then I have a job to break that routine so my new routine becomes clothes left on for weeks until they begin to look grimy and I start to smell. This is not agreeable to me at all but this inactivity seems to become my new routine.

would anyone else say that they experience no routine as their new routine. It upsets and frustrates me that I seem incapable of breaking these negative and self destructive habits. I would appreciate input and if possible advice on this problem.

Parents
  • I always thought I was quite organised before I got diagnosed, but when I think about it now I’m not!  I just make lists and lists and lists.  So my routine is to start the day by making a list and then work through it.  I found this really helpful when I was furloughed and I had to do certain things by a certain time.

    When I don’t have enough to do I wander to the fridge!!

Reply
  • I always thought I was quite organised before I got diagnosed, but when I think about it now I’m not!  I just make lists and lists and lists.  So my routine is to start the day by making a list and then work through it.  I found this really helpful when I was furloughed and I had to do certain things by a certain time.

    When I don’t have enough to do I wander to the fridge!!

Children