Guidance for Adults for Assessment & Diagnosis through the NHS

Here is information on what to do to get assessed:

http://www.autism.org.uk/about-autism/all-about-diagnosis/diagnosis-information-for-adults/how-do-i-get-a-diagnosis.aspx (NAS also have a helpline)

Here is a shortened version of the AQ50 (a validated test by Simon Baron-Cohen et al used in ASC assessments) which GP's should use as a screening tool prior to referral:

Link to AQ10 (autism quotient screening questionnaire): http://docs.autismresearchcentre.com/tests/AQ10.pdf (complete and take to GP).

Please note, your GP cannot fob you off with comments such as "there is no support for adults" or "we have no facility to assess locally" etc. You are entitled to an out-of-area assessment if there is no local clinic.

Your right to a second opinion on the NHS.

NHS choices regarding treatment, hospital, clinician etc. Here is NHS Choose & Book.

NHS statement on referrals entitlement here and here.

Check (and leave) reviews of your clinic or hospital before you choose. You may also read and leave reviews here by selecting your place of treatment from the menu.

Here is a quote from the Department of Health:

"Patients currently have the right to choose the organisation that provides their treatment when they are referred for their first outpatient appointment with a service led by consultants, and to information to support that choice. Any choice beyond this is at the discretion of the individual primary care trust (PCT).

You may be aware that the Government has made a number of commitments relating to extending the choice of treatment and provider in the vast majority of NHS-funded services. Views on implementing these commitments were collected in the subsequent public consultation Greater choice and control. The formal responses to the consultation are being published on the Department of Health website at www.dh.gov.uk and can be found by typing ‘Greater choice and control’ in the search bar.

The NHS Standard Contract states that providers must accept referrals for any patient who chooses that provider and whom it is within their clinical competence to treat.

I would suggest that patients contact the Patient Advice and Liaison Service (PALS) at their local PCT, which can be found through the NHS Choices website at www.nhs.uk. PALS will be able to contact and investigate this issue with the chosen provider."

NHS statement on referrals entitlement: http://www.nhs.uk/chq/Pages/1094.aspx?CategoryID=68&SubCategoryID=153

and

http://www.nhs.uk/NHSEngland/AboutNHSservices/doctors/Pages/gp-referrals.aspx

NHS NICE guidelines here: http://www.nice.org.uk/CG142

Autism Strategy here:

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/151844/dh_122910.pdf.pdf

If you need to complain to the NHS about their failures, here:

http://www.nhs.uk/choiceintheNHS/Rightsandpledges/complaints/Pages/NHScomplaints.aspx

Anyone facing trouble getting their GP to listen, contact your local councillor here:

http://www.writetothem.com/

If you do not get sufficient help from them, go to your MP here:

http://www.theyworkforyou.com/

There is also the Lords but they have no duty to reply to members of the public:

http://www.writetothem.com/lords

(Mods: please could this be made into a sticky?)

Parents

ClaireHig over 8 years ago

Even to book an appointment I had to use the online system, I can't phone. The earliest appointment is usually at least 2 weeks wait, for anyone at my surgery. They have appointments for another local surgery, but I can't go there- I've never been before.
I've seen other GPs as I've been forced to move home 4 times & GPs don't do home visits. I get so stressed I can't sleep for days before the appointment. And then spend all day in bed for weeks. This is the case whenever I have to see people. So I try not to, as I naturally have very bad sleep problems anyway. GPs have failed to fix it with drugs/therapy.
GPs nor anyone understands how hard it is to see people. It's too hard, even though I know seeing a GP will literally only be for a few minutes. I write down what I want to say before. But even then I couldn't say it & my mother handed them what I'd written. And then just as you did they rationalise doing nothing by saying that I managed to see them so I must be fine. The irony is that GPs & even community health won't respond by email. So if I hadn't seen the GP, they'd still be allowed to assume & record that I'm fine. The system is designed to refuse help.
Having read what I wrote to say to the GP, it says 'clinical detail of my Asperger's'. I forgot to put I wanted a referral. But given that the GP obviously isn't qualified to assess, it's obvious isn't it? She did go on about not seeing what she could add & implying the psychologist had been more adept.

Reply

ClaireHig over 8 years ago

Even to book an appointment I had to use the online system, I can't phone. The earliest appointment is usually at least 2 weeks wait, for anyone at my surgery. They have appointments for another local surgery, but I can't go there- I've never been before.
I've seen other GPs as I've been forced to move home 4 times & GPs don't do home visits. I get so stressed I can't sleep for days before the appointment. And then spend all day in bed for weeks. This is the case whenever I have to see people. So I try not to, as I naturally have very bad sleep problems anyway. GPs have failed to fix it with drugs/therapy.
GPs nor anyone understands how hard it is to see people. It's too hard, even though I know seeing a GP will literally only be for a few minutes. I write down what I want to say before. But even then I couldn't say it & my mother handed them what I'd written. And then just as you did they rationalise doing nothing by saying that I managed to see them so I must be fine. The irony is that GPs & even community health won't respond by email. So if I hadn't seen the GP, they'd still be allowed to assume & record that I'm fine. The system is designed to refuse help.
Having read what I wrote to say to the GP, it says 'clinical detail of my Asperger's'. I forgot to put I wanted a referral. But given that the GP obviously isn't qualified to assess, it's obvious isn't it? She did go on about not seeing what she could add & implying the psychologist had been more adept.

Children

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