Guidance for Adults for Assessment & Diagnosis through the NHS

Here is information on what to do to get assessed:

http://www.autism.org.uk/about-autism/all-about-diagnosis/diagnosis-information-for-adults/how-do-i-get-a-diagnosis.aspx (NAS also have a helpline)

Here is a shortened version of the AQ50 (a validated test by Simon Baron-Cohen et al used in ASC assessments) which GP's should use as a screening tool prior to referral:

Link to AQ10 (autism quotient screening questionnaire): http://docs.autismresearchcentre.com/tests/AQ10.pdf (complete and take to GP).

Please note, your GP cannot fob you off with comments such as "there is no support for adults" or "we have no facility to assess locally" etc. You are entitled to an out-of-area assessment if there is no local clinic.

Your right to a second opinion on the NHS.

NHS choices regarding treatment, hospital, clinician etc.  Here is NHS Choose & Book.

NHS statement on referrals entitlement here and here.

Check (and leave) reviews of your clinic or hospital before you choose.  You may also read and leave reviews here by selecting your place of treatment from the menu.

Here is a quote from the Department of Health:

"Patients currently have the right to choose the organisation that provides their treatment when they are referred for their first outpatient appointment with a service led by consultants, and to information to support that choice. Any choice beyond this is at the discretion of the individual primary care trust (PCT). 

You may be aware that the Government has made a number of commitments relating to extending the choice of treatment and provider in the vast majority of NHS-funded services. Views on implementing these commitments were collected in the subsequent public consultation Greater choice and control. The formal responses to the consultation are being published on the Department of Health website at www.dh.gov.uk and can be found by typing ‘Greater choice and control’ in the search bar. 

The NHS Standard Contract states that providers must accept referrals for any patient who chooses that provider and whom it is within their clinical competence to treat. 

I would suggest that patients contact the Patient Advice and Liaison Service (PALS) at their local PCT, which can be found through the NHS Choices website at www.nhs.uk. PALS will be able to contact and investigate this issue with the chosen provider."

NHS statement on referrals entitlement: http://www.nhs.uk/chq/Pages/1094.aspx?CategoryID=68&SubCategoryID=153

and

http://www.nhs.uk/NHSEngland/AboutNHSservices/doctors/Pages/gp-referrals.aspx 

NHS NICE guidelines here: http://www.nice.org.uk/CG142 

Autism Strategy here: 

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/151844/dh_122910.pdf.pdf 

If you need to complain to the NHS about their failures, here: 

http://www.nhs.uk/choiceintheNHS/Rightsandpledges/complaints/Pages/NHScomplaints.aspx 

Anyone facing trouble getting their GP to listen, contact your local councillor here: 

http://www.writetothem.com/ 

If you do not get sufficient help from them, go to your MP here: 

http://www.theyworkforyou.com/ 

There is also the Lords but they have no duty to reply to members of the public: 

http://www.writetothem.com/lords

(Mods: please could this be made into a sticky?)

Parents
  • About the first PIP claim which you couldn't get to the interview, would you be alright with them visiting you in your home? - with someone supportive and safe to help with your anxiety on that day.  What you would need is a letter from doctor stating that due to.................. my patient wouldn be unable to safely travel to a DWP interview and therefore I'm requesting a home visit.     Sorry Claire - have just read your 2nd post - you can't have a home visit either.  

    As far as I know if the patient can't travel to the DWP interview they require a doctors letter with a request for a home visit.  You interacted with the GP at the surgery with your Mum with you did you not?  Would it really be too intrusive to have them in your home if you had a supportive person with you?      It might be best to get a Disability Advisor to advise you going forward:  what letter is needed from Dr etc.  Google for your council's disability rights officer and contact to make an appointment.  Take someone with you if that will help and good luck Claire.  PS.  You sounded very let down by the letter Dr wrote - are you considering changing Drs? or was it just this one visit that was difficult.

Reply
  • About the first PIP claim which you couldn't get to the interview, would you be alright with them visiting you in your home? - with someone supportive and safe to help with your anxiety on that day.  What you would need is a letter from doctor stating that due to.................. my patient wouldn be unable to safely travel to a DWP interview and therefore I'm requesting a home visit.     Sorry Claire - have just read your 2nd post - you can't have a home visit either.  

    As far as I know if the patient can't travel to the DWP interview they require a doctors letter with a request for a home visit.  You interacted with the GP at the surgery with your Mum with you did you not?  Would it really be too intrusive to have them in your home if you had a supportive person with you?      It might be best to get a Disability Advisor to advise you going forward:  what letter is needed from Dr etc.  Google for your council's disability rights officer and contact to make an appointment.  Take someone with you if that will help and good luck Claire.  PS.  You sounded very let down by the letter Dr wrote - are you considering changing Drs? or was it just this one visit that was difficult.

Children
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