Revisiting diagnosis

I’m hoping to get some advice I think after speaking to someone recently. I’m struggling and reached out to someone professional and after hearing her reaction it’s made me want to re visit my diagnosis. 

I started diagnosis just before lock down and my assessment was via zoom call. To cut a long story short the doctor told me he doesn’t think I have autism because when I worked in an office I would join some friends if going for a coffee on lunch break. I’m powerless to question his decision but after hearing how shocked the psychologist was who I was speaking to this week it’s made me want to go back. 

Has anyone done this and been reassessed and diagnosed? Anyone else had a zoom assessment? 

Parents
  • On a serious note i tried getting a diagnosis and because i can hold down a job i wasnt considered viable. 

    This is one of the most discriminatory elements found in some parts of the NHS. Because you are functioning in society - i.e. not causing any trouble to neurotypicals - you cannot be autistic. What about all the trouble being autistic, and an undiagnosed autistic at that, is causing to the autistic person themselves?

  • If this is true about the NHS, I wonder what changes they will make to this policy or policies in the post-Covid era - will they deny services and/or support to someone because thier Covid vaccine/booster/flu shots record is not up to date and/or thier GP attendance record is not up to date? Or will they make it part of the process to update all of this before they proceed with any further services/support? 

  • The attitude is not systemic to the NHS as a whole, it is that there are too many backwaters where outdated attitudes to autism lurk, and are not effectively challenged.

  • It’s almost as if some people point-blank refuse to understand the condition and only want to see it in terms of a disciplinary or behavioural issue, where they constantly feel the need to “put one in one’s place” “knock someone back a peg or ten” and many similar (far ruder) things - being constantly told and reminded that one “does not understand that one is wrong” and that “one does not know nor understand the difference” between bullying/prejudice and thier particular brand of discipline, which they feel is essential to managing the condition and where any attempt to reason with such people results in being routinely screamed at to “pack it in” (which I endured for 30 years in supermarkets, on the shop floor in front of customers, especially in my last supermarket job for 17 years, with one middle aged woman manager from an ex-Millitary background, which eventually resulted in everyone at my last store constantly screaming the same things at me) yet people who have relatives with the condition and whose family work in the area of mental health, aside from any other differences should know better, so there is no real excuse for such attitudes - long before my diagnosis, it was always said to me that I “know too much” (about things that it was deemed that I should not know anything about) and “not enough” (about things I should know) - against this backdrop it is virtually impossible to be allowed to “win” with (or against) such mindsets 

  • That seems draconian, to say the least. To me, that clinical opinion seeks to rob you of your humanity.

Reply Children
  • It’s almost as if some people point-blank refuse to understand the condition and only want to see it in terms of a disciplinary or behavioural issue, where they constantly feel the need to “put one in one’s place” “knock someone back a peg or ten” and many similar (far ruder) things - being constantly told and reminded that one “does not understand that one is wrong” and that “one does not know nor understand the difference” between bullying/prejudice and thier particular brand of discipline, which they feel is essential to managing the condition and where any attempt to reason with such people results in being routinely screamed at to “pack it in” (which I endured for 30 years in supermarkets, on the shop floor in front of customers, especially in my last supermarket job for 17 years, with one middle aged woman manager from an ex-Millitary background, which eventually resulted in everyone at my last store constantly screaming the same things at me) yet people who have relatives with the condition and whose family work in the area of mental health, aside from any other differences should know better, so there is no real excuse for such attitudes - long before my diagnosis, it was always said to me that I “know too much” (about things that it was deemed that I should not know anything about) and “not enough” (about things I should know) - against this backdrop it is virtually impossible to be allowed to “win” with (or against) such mindsets