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Help Please, saw consultant today and now even more lost

annagb

Hi

Im new in here, my sons is 3 turns 4 in  october

we saw the consultant peadiatrition today went through history concerns etc, she said she was reffering us to her counterpart as we had been reffered to her wrongly as she works the other side of the district.

she saw traits in my son and said he does need to go through the multi disaplinary assesment (though he isnt displaying the most common theres definatly need) she also stated he needs an adult all the time and one to one etc, so she has reffered us to the other peadiatric consultant for our half of the district, the biting point is there s two year wait, i dont know how we will cope for 2 years before the assesment starts

my boys, already had senco at day nursery coming in for a year, had been refused a place at a main stream school bursery until he is diagnosed or has a statement, he has no danger awareness etc, smacks himself, but in turn is very loving at times and very verbal

im confused and lost and extremely upset i dont know what to do

my son is also under a caf, and the communication and intigration team but we are all stuck

any help appreciated

it also doesnt help that we are stuck inside all holidays as he isnt allowed a special needs buggy as he is able bodied, yet runs into traffic all the time or meltdown and lays on the floor dead weight so we cant trust him to go a walk

Parents

  • It makes me so mad that the NHS is in such a state.  It also makes me so mad that autism is not understood and eligibility for certain things is refused.

    OK, you are entitled to go back to your GP and request a referral to a service with a much shorter wait.  You will have a good case because of what you said about him being refused a place in mainstream school.

    Could you request an assessment of need for funding for a buggy from social services?  There are also charities out there that pay for such things if you Google.  In the longer term though as he gets bigger a buggy might not be suitable.  Have you tried wrist straps and those backpacks with reins on them?

Reply

  • It makes me so mad that the NHS is in such a state.  It also makes me so mad that autism is not understood and eligibility for certain things is refused.

    OK, you are entitled to go back to your GP and request a referral to a service with a much shorter wait.  You will have a good case because of what you said about him being refused a place in mainstream school.

    Could you request an assessment of need for funding for a buggy from social services?  There are also charities out there that pay for such things if you Google.  In the longer term though as he gets bigger a buggy might not be suitable.  Have you tried wrist straps and those backpacks with reins on them?

Children
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