Hi i was pointed in this direction by other people and another site.
I highly suspect my son has high functioning autism or apbergers,i dont know where to go anymore,hes 6,hes under the peadatrician,he has been since around the age of 2 or 3,hes also under salt and has been to see the occupational therapist who has said hes weak from waste down,catches and throws a ball with closed hands and does not have one hand more dominant than the other,also balance not brilliant either.
Starting from when he was a baby,in his cot at night even if your turned over in your sleep it would wake him up,he hated being picked up as a baby it made him cry.
At about 8 months old he would be on his tummy and would writhe about puffind and panting going red in the face,i thought he had tummy troubles,this happened a lot,i took him to the gp and he mentioned self stimulation,i was not happy with this,anyway it carried on and i went back to anothre doctor convinced he had a bad tummy and demanded to see a peadtrician.The actual gp said she was not happy with his speech and laungage.
He starts standing and walking and when he gets excited flaps his arms and jumps up and down,this still happens now and he is 6.
Come 2 and a half years health visitor comes out and tells me he has developmental delay.
Meant to mention too from a very young age all the way round the supermarkets he would have a high pitched scream.
We worked out he was scared of the hoover,hand dryers and hair clippers,but was drwan to lights,if we were out he would point to a light and ask why it was out serveral times.
His speech became repetitive,so much to the point it drove me batty,he would ask the same question over and over,i think salt called it echolia? and i would feed him it back and say do you remember what mummy just said and he would say the answer but then repeat the question again,and i thank my lucky stars that salt actually saw this happen.
His behaviour started being appaling,he would throw himself on the floor,in the middle of the road and scream all the way round the shops,he still does this (hes now 6) walk towards moving cars or run out into the road,so we had to be carfull and keep a tight grip on him,we did keep in the buggy for while even at nursery.
Nursery he became attached to one key worked,he couldnt follow simple instructions,if they asked what he wanted for dinne he couldnt answer for around 5 mins (he was 3 then) they got a pychologist in,he was playing alongside children not with them, he could not tell them what he had done at the weekend instead he copied what others said,i think nursery found him hard work,he was very repetitive there. He fouod it very difficult going into the hall,as it was attached to the school,it was hard he got excluded from things,i know they done it for his own good,like bringing him back from the hall or not taking him because he got so upset,not taking him to the library and not letting him take part in the nursery graduation because it would be so upsetting for him. But then when ready for school,they made a point of doing the transition for him with extra time to see the new teacher,so he would settle better.
Meant to say the pychologist said she wanted him on school action plus immediatley and for us to sign a caf,however ive not heard anything about the caf since.
Meanwhile at home,behaviour was awfull,there was o break from it,we had to hide everything that may cause a danger (we still do and hes 6) My bathroom has been flooded goodness knows how many times.
Time came to start school,he cried everyday for months going into school,they told us he was fine as soon as we left. They gave him a visual time table and a timetable for at home for which teachers were on playground duty as he would continously ask,but then he got obssesed with the timetable so they took it off him.
School also got another pychologist in but me living with this everyday most of it was normal so i diddnt really say much,looking back now being a bit more saaavy there was tonnes more i could have said,however school had told him enough to push for an ados test,so back to the peadatrician and he had the ados test,he failed on two things and passed on two, so apparently he was not autistic,it was just speech and laungage problems,(what i want to know is if he wa high functioning or apsrbegers would this have shown up?)
Christmas,what a time,i used to love it,however my sons lack of getting excited seems to make it not the same,he just seems so underwhelmed,i dont get it. He rarely has a proper smile,its false,and rarely laughs,when he does laugh,its a false exaggerated laugh. Comming up to christmas holidays at school and summer holidays he gets stressed.
He absolutely thrives on routine,at school he hates it when they have pe as its out of his routine.
Eberytime we used to go past the local police station he would say,police care,police car,police van,police car.
I used to love the holidays,i used to love speding quality time with my son,however its a case of being on the ball all the time,a few weeks ago i tried him with a blunt knife with his tea,he tried stabbing his brother with it,luckily i was on the ball and stopped it happening,hes always at his brother,trying to hurt him,and i have to intervene a lot. Going round the shops is an utter nightmare,he screams all the way round most of the time,only a few weeks ago a lady in the supermarket told me i deserved a medal.
He will take things very literally,like a few weeks ago dad says dont run on ahead and he says i diddnt run on anyones head,it did make me laugh but at the same point i knew it was not right,once in the supermarket he was having a huge tantrum and screamed at the top of his voice i hate that lady with the pink hair. He once walked out the house and said at the top of his voice i hate that lady across the road.
At the park i cannot leave him alone,hes gone up to children and said i hate that boy! just out of nowhere. One day he started on this child for nothing and i apologised to dad and i said i think hes autistic,and he said i know im a doctor and i can tell something is not right.
He has still at the age of 6 thrown himself in the middle of the road and not wanted to move,ive had to pyschically pick him up and carry him,and i kow fine well that if he has a tantrum he would leg it out onto the road.
We saw an audioligist not so long back,hes given me a leaflet on hypercussis.
The new peadatrician is cracking she reffered him to the audiologist and the pychologist,however we got the knockback from the pychologist asking me to go on a parenting course first! i have 4 children and i know hes not right,when i spoke to the lady from the childrens centre she actually laughed and said you dont need to go on a parenting course you already do everything with him!
There is so much more i could say,however i think ive babbled enough,i just feel like i am banginging my head against a brick wall and getting no support what so ever,sometimes i think im being neurotic and maybe hes not as bad as i think,however the holidays are hellish,its such hard work and has driven me to tears,ive been into school twice crying,saying i cant stand it,theyve said to go to the doctors. Remakably even though hes been delayed and getting one - one in school and in a fine motors skills group and gross motor sckills group,academically he seems to be doing ok,and his behaviour in school has improved. I think he thrives on the routine of school.He id on school action plus.
The peadatrician has moved us from being seen every 6 months to every 4 months and whilst i can talk to her what can she do? I just feel like im getting nowhere. Where do i go from here? what do i do? Am i being neurotic? or do i just carry on banging my head against the wall?
