Autism in Britain and Germany

Hello, 
I live in Germany but I would like to know
what the situation is like for autistic people in
Great Britain. I recently founded a self-help group
and am currently in Berlin trying to network with
other autistic people, self-help groups and
organizations in order to realize joint projects.
Personally, I would also be interested in which
projects already exist in Great Britain.

LG Madrugada
Parents
  • Oh wow I'm so impressed you are doing this !!!! The people who will benefit from.what you are doing will be very glad this kind of thing you are doing is much needed and invaluable. I may have a different opinion to most on here but sadly me and my son did not experience any help In the UK in fact the opposite it was a sh#! Show and I tried my damndest to get him better schooling therapy etc etc and I'm told there is an organisation called National autistic  society that raises money and does all these things to help (please don't t take offence) but Im angry as we never saw or got any help at all ever nor do we now and my sons life is pretty much ruined .Sorry but my opinion of this country is very low and I am so appalled by the complete absence of any help that I am actually seriously looking to leave the UK and have been scouring the world researching where has the most actually being done to help people with asd..I have seen in Australia they have a lot in place like groups you can attend and get  life skills course they did speed dating..these are just examples. Also in the USA it is very progressive in terms of cannabis being prescribed responsible by doctors etc..I just see a complete lack of progress in this country.Hopefully someone on here maybe able to give you something more positive. You might want to think about changing your title as "autism in uk and germany" isn't enough to make people who maybe able to help you understand what your asking and it is important you get some response as what you're doing is very important..maybe change title to need help setting up new sister asd  groups in the UK ? Or something. 

  • Hello NAS83342, first of all I would like to thank you for the detailed description of your unfortunately negative experience in Great Britain and I hope for you that this will change soon. I don't have any children and am mainly concerned with the living conditions of adult autistic people, but the situation in German schools is probably a lot worse. It starts with the fact that school policy is decided at the state level and not centrally. With a total of 16 federal states, you can certainly imagine how confusing the regulations are. In addition, there is a chronic shortage of teachers and graduates without previous pedagogical knowledge are also employed as graduates. Ultimately, we even discussed reallocating funds made available for inclusion because the overall situation in the schools is so bad. In Germany there is above all the association "Autismus Deutschland" founded by parents of children in the spectrum, which is committed to supporting autistic children. However, I am a simple member of Aspies e.V., an association that is organized exclusively by adults in the spectrum. The needs of adults with Asperger's autism in particular are almost completely neglected in Germany: starting with the diagnosis, health care and work to other everyday problems. Regarding the title (autism in Germany and Great Britain), my intention was to first exchange general information about the situation in both countries. But direct contact between self-help groups across national borders - at least that's how I understand your suggestion - would also be a good idea. Wishing you you a happy new year. LG madrugada

Reply
  • Hello NAS83342, first of all I would like to thank you for the detailed description of your unfortunately negative experience in Great Britain and I hope for you that this will change soon. I don't have any children and am mainly concerned with the living conditions of adult autistic people, but the situation in German schools is probably a lot worse. It starts with the fact that school policy is decided at the state level and not centrally. With a total of 16 federal states, you can certainly imagine how confusing the regulations are. In addition, there is a chronic shortage of teachers and graduates without previous pedagogical knowledge are also employed as graduates. Ultimately, we even discussed reallocating funds made available for inclusion because the overall situation in the schools is so bad. In Germany there is above all the association "Autismus Deutschland" founded by parents of children in the spectrum, which is committed to supporting autistic children. However, I am a simple member of Aspies e.V., an association that is organized exclusively by adults in the spectrum. The needs of adults with Asperger's autism in particular are almost completely neglected in Germany: starting with the diagnosis, health care and work to other everyday problems. Regarding the title (autism in Germany and Great Britain), my intention was to first exchange general information about the situation in both countries. But direct contact between self-help groups across national borders - at least that's how I understand your suggestion - would also be a good idea. Wishing you you a happy new year. LG madrugada

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