Co-morbid Diagnoses

Hi Jasysmum,

That sounds similar to my situation.  My eldest daughter has Ehlers-Danlos (Hypermobility type) and my middle child, who is a boy, has Aspergers.  Both only recently diagnosed even though they are 19 and 17 respectively.  We have had an 'interesting' few years trying to work out what on earth was going on but we got there in the end.

Both are doing much better now that we know more about what they are struggling with and why. 

In answer to your question, my daughter does not have Autism and yes she does tire easily and finds her 'Proprioception' (knowing where your parts of your body are in space) difficult which can lead to injury.  For example, she has to concentrate carefully on where her feet are by looking at them when going down the stairs.  

She is a member of the Hypermobility Syndrome Association which is brilliant in providing help and support.  She has recently met up with a support group of sufferers who meet locally to us as well.

Our GP has told us that there is absolutely no point in seeing a consultant as there is nothing they can do for her.  However, we found a manipulative physiotherapist who has been brilliant in teaching her the exercises necessary in keeping her mobile and as fit as possible though she can't always manage them when she is injured.

By the way, she has recently been accepted in medical school which I hope is of some encouragement.

Have no idea if the two conditions are related but I don't intend to spend much time worrying about it.  My youngest son, 12, is not currently showing signs of either condition so all my fingers are crossed for him. 

I hope this is of some help to you.

Hi Jasysmum,

That sounds similar to my situation.  My eldest daughter has Ehlers-Danlos (Hypermobility type) and my middle child, who is a boy, has Aspergers.  Both only recently diagnosed even though they are 19 and 17 respectively.  We have had an 'interesting' few years trying to work out what on earth was going on but we got there in the end.

Both are doing much better now that we know more about what they are struggling with and why. 

In answer to your question, my daughter does not have Autism and yes she does tire easily and finds her 'Proprioception' (knowing where your parts of your body are in space) difficult which can lead to injury.  For example, she has to concentrate carefully on where her feet are by looking at them when going down the stairs.  

She is a member of the Hypermobility Syndrome Association which is brilliant in providing help and support.  She has recently met up with a support group of sufferers who meet locally to us as well.

Our GP has told us that there is absolutely no point in seeing a consultant as there is nothing they can do for her.  However, we found a manipulative physiotherapist who has been brilliant in teaching her the exercises necessary in keeping her mobile and as fit as possible though she can't always manage them when she is injured.

By the way, she has recently been accepted in medical school which I hope is of some encouragement.

Have no idea if the two conditions are related but I don't intend to spend much time worrying about it.  My youngest son, 12, is not currently showing signs of either condition so all my fingers are crossed for him. 

I hope this is of some help to you.