• Replies 11 replies
  • Subscribers 25 subscribers
  • Views 2301 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Difficult behaviour difficult to prove but have no caught it

Penski

I have had trouble getting my daughter diagnosed because while out she is quiet, listens and enjoys being a voyeur in life but at home, behind closed doors, she is quite different. We have had an OT assessment and Camhs Social Worker has informally diagnosed Asperger's Syndrome with Sensory Integration Disorder.

The only way I have been able to get help recently is to take videos of her typical behaviour. MyDaugherVideos the videos taken are all within 4 days of each other and not all videos have been uploaded, so you can see that we spend almost every day in conflict or noise.

Any advice or opinion would be very much appreciated.

Parents

  • Hi Guys

    Firstly I just want to thank you for your comments and taking the time to feedback to me.

    I won't be leaving the YouTube videos on for much longer.  I put them up merely as a means to get help. 

    Already someone has kindly shown me that my daughter's laughing for no reason could be part of panic or anxiety.  True, I wondered why she says at the end, I'm shaking and my teeth are chattering.  Which is what I do when in shock.

    I am struggling to understand her condition - we've been through so much, every day she astounds me with the things she does.  When she was 3 she was able to tie her shoe laces and we enjoyed times counting up to 100 and back again.  She was determined to ride a bike without stablizers at 4. She does so much yet her communcational understanding, visual cue non recognition are a constant bemusement to me.  One day, when she was 7 years old, her behaviour reduced me to sobs.  She was laughing - I looked at her with sudden acknowledgement that something wasn't right and said, 'Darling, I'm not laughing, I'm crying.'  She looked mortified.

    I do hope you can all give me more insight into her condition and continue offering suggestions.  More importantly, do any of you know why she falls asleep randomly, with a skirt over her head?  Why she does some of the things on the videos?

    Once I get a better understanding, the videos will be removed.

    Many, many thanks for your help and support.  I by no means wish to offend anyone, I just want to understand my daughter and have a happier home.

    Crystal - with the advice of her father, two days ago I put together a rota - this has helped immensely.  The thing is with this condition, it's hard not to think that she's doing things deliberately.  Everything has to be her way - this is what I struggle with.  I, myself, too am a compulsive person, I'll do almost everything spontaneously, now I am having to learn to plan.  It's a learning curve.  Oh, and sticking to the plan too.  I know, it's gotta be done :-)

Reply

  • Hi Guys

    Firstly I just want to thank you for your comments and taking the time to feedback to me.

    I won't be leaving the YouTube videos on for much longer.  I put them up merely as a means to get help. 

    Already someone has kindly shown me that my daughter's laughing for no reason could be part of panic or anxiety.  True, I wondered why she says at the end, I'm shaking and my teeth are chattering.  Which is what I do when in shock.

    I am struggling to understand her condition - we've been through so much, every day she astounds me with the things she does.  When she was 3 she was able to tie her shoe laces and we enjoyed times counting up to 100 and back again.  She was determined to ride a bike without stablizers at 4. She does so much yet her communcational understanding, visual cue non recognition are a constant bemusement to me.  One day, when she was 7 years old, her behaviour reduced me to sobs.  She was laughing - I looked at her with sudden acknowledgement that something wasn't right and said, 'Darling, I'm not laughing, I'm crying.'  She looked mortified.

    I do hope you can all give me more insight into her condition and continue offering suggestions.  More importantly, do any of you know why she falls asleep randomly, with a skirt over her head?  Why she does some of the things on the videos?

    Once I get a better understanding, the videos will be removed.

    Many, many thanks for your help and support.  I by no means wish to offend anyone, I just want to understand my daughter and have a happier home.

    Crystal - with the advice of her father, two days ago I put together a rota - this has helped immensely.  The thing is with this condition, it's hard not to think that she's doing things deliberately.  Everything has to be her way - this is what I struggle with.  I, myself, too am a compulsive person, I'll do almost everything spontaneously, now I am having to learn to plan.  It's a learning curve.  Oh, and sticking to the plan too.  I know, it's gotta be done :-)

Children
No Data