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Difficult behaviour difficult to prove but have no caught it

Penski

I have had trouble getting my daughter diagnosed because while out she is quiet, listens and enjoys being a voyeur in life but at home, behind closed doors, she is quite different. We have had an OT assessment and Camhs Social Worker has informally diagnosed Asperger's Syndrome with Sensory Integration Disorder.

The only way I have been able to get help recently is to take videos of her typical behaviour. MyDaugherVideos the videos taken are all within 4 days of each other and not all videos have been uploaded, so you can see that we spend almost every day in conflict or noise.

Any advice or opinion would be very much appreciated.

Parents

  • Hi - I had a look at 3 of the videos.  Sorry, but I don't agree with putting her on U tube.  If it were me, I wouldn't want to be on there so anyone anywhere could view me, especially when I was upset etc.  Can I ask what allowances you make for her.  I've altered some of my behaviour over the years to relate better to my son.  My natural personality fits in with him in some ways, but not others so I've modified as best I can the bits that he would find unhelpful.  Eg:  I'm a "get up + go" sort of person but he needs a lot more time for certain things as he likes to go thru his routine.  So we stick with the routine.  Things work out better that way.  Also, even if I feel a bit irritated I try not to show it because I don't think he's trying to irritate me.  I find things like that make life easier for us both.

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  • Hi - I had a look at 3 of the videos.  Sorry, but I don't agree with putting her on U tube.  If it were me, I wouldn't want to be on there so anyone anywhere could view me, especially when I was upset etc.  Can I ask what allowances you make for her.  I've altered some of my behaviour over the years to relate better to my son.  My natural personality fits in with him in some ways, but not others so I've modified as best I can the bits that he would find unhelpful.  Eg:  I'm a "get up + go" sort of person but he needs a lot more time for certain things as he likes to go thru his routine.  So we stick with the routine.  Things work out better that way.  Also, even if I feel a bit irritated I try not to show it because I don't think he's trying to irritate me.  I find things like that make life easier for us both.

Children
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