GP Trying To "cure" Me

Hi, I'm Angel, joined here today and was diagnosed as a teenager. I have a few other problems alongside my autism and one of them is my stomach which also ties in with digestion. I'm used to having pain in my stomach and feeling sick daily now but a new one is getting pain and feeling sick when in the car, which is new for me I used to travel really well. I have fears of medical places, people and tests but finally built up the courage to go and see the GP. She's wanting me to have tests but also to go on different medications because she's almost certain it will improve my autism and I almost get the feeling she's trying to cure me. She hasn't said so but I get that feeling.

A few years ago I was involved in MH services because I had an imaginary friend and suddenly I'm involved with MH because the GP thinks I've got psychosis and worst they agreed! I went through years of gruelling and stressful times and the result was burnout and severe anxiety. Eventually I got out of the service but it took a long time and I had to tell them my imaginary friend is gone... She isn't but I got the feeling if I didn't tell them then they wouldn't leave me alone.

People keep trying to cure me and keep labelling me with different things. It's horrible and I'm annoyed with the GP and MH services. I write down exactly how I'm feeling and what I think but everyone ignores it and tells me what they think. It's so annoying.

I just want to be understood and listened to.

Parents
  • Hi Angel, I can relate to the stomach/digestion issues and also to feeling misunderstood by GPs and mental health issues. For me it was more that I had GPs that did not believe me that I was not deliberately loosing weight, which was so damaging as I am constantly battling to keep up my weight/ gain weight despite issues with digestion and challenges around eating. It will be good to have the digestive issues assessed and in the mean time a food diary can be useful. For me they never found the cause of the digestive issues unfortunately, (so IBS) but I did realise I react to some foods like garlic/onion, dairy make it worse. Unfortunately I seem to react to a lot of other things too and stress makes everything worse as well. I am actually currently not in good physical health but I was also putting off seeing a GP out of fear of being misunderstood again- I ended up writing my concerns (eg. about being misdiagnosed with eating  disorders etc) on the online form which my practice uses for appointment requests so that it is out in the open, which has helped and I was met with much more understanding.  You mention you also tried writing down your concerns but it didn't help? Did they read it? 

Reply
  • Hi Angel, I can relate to the stomach/digestion issues and also to feeling misunderstood by GPs and mental health issues. For me it was more that I had GPs that did not believe me that I was not deliberately loosing weight, which was so damaging as I am constantly battling to keep up my weight/ gain weight despite issues with digestion and challenges around eating. It will be good to have the digestive issues assessed and in the mean time a food diary can be useful. For me they never found the cause of the digestive issues unfortunately, (so IBS) but I did realise I react to some foods like garlic/onion, dairy make it worse. Unfortunately I seem to react to a lot of other things too and stress makes everything worse as well. I am actually currently not in good physical health but I was also putting off seeing a GP out of fear of being misunderstood again- I ended up writing my concerns (eg. about being misdiagnosed with eating  disorders etc) on the online form which my practice uses for appointment requests so that it is out in the open, which has helped and I was met with much more understanding.  You mention you also tried writing down your concerns but it didn't help? Did they read it? 

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