Waiting List for talking therapies on the NHS

Hello everyone,

im trying to access talking therapy on the NHS. What I’ve been offered is a contracted out service to a private company and the waiting list is over a year. I’m thinking of complaining to my CCG as the GP tells me that due to their contract they can’t offer me anything else other than this useless service (lots of reviews online saying that this company is terrible) and the waiting list is too long. My situation is not mild (I have PTSD and severe anxiety) but I’m still having to wait for over a year.

Has anyone tried to challenge or complain about the delays and poor service with NHS talking ttherapies? I want to complain because it’s a terrible service and totally unacceptable but is it just a total waste of time? I know it will stress me out and use up what little energy I have to complain. 

is there any point in challenging or complaining? Or am I naive to even try? Has anyone else done this? 

thanks 

Parents
  • I think you certainly do have grounds for a complaint but in all honesty I wonder if it is worth it. I referred to healthy minds in our area as we dont have talking therapies, its like the equivalent here and it was completely useless. They put me on a CBT course, dont know if youve ever tried that?

    It was very much one size fits all therapy and if that thing didnt work for you they wernt interested . It was a case of do this or nothing and when I tried to tell them the things they were suggesting wouldnt work for an autistic person they were just like well this is CBT, do it anyway. Some of the stuff they suggested was unbelievably unhelpful and triggering.

    Maybe Talking Therapies would be different and better but if they suggest CBT run for the hills

  • I too found h.m. not helpful in the slightest. They made me worse...until I pushed for further treatment saying what I'd done previously wasn't helping. I also complained to the manager because of how one of the therapists talked to me. I figured if more people did the same perhaps they might listen. These places are supposed to help but 9/10  make it worse. Then the organisation for autistic individuals in my area is even worse so I've just avoided.

    The most helpful thing really has been talking to a private counsellor who was autistic themselves. If you can afford it and can find one it's really worth it. This has been far more helpful in understanding autism from a non-deficit point of view, understanding how my brain works and acceptance. This was better than trying to mould my brain everytime I got anxiety. I understood the CBT and went through the motions but I don't think it was very effective just because I'm wired differently. They are putting autistic people through treatment which isn't effective and this is a waste of resources and time for everyone involved. Ive heard ACT, CAT & DBT are more suitable.

    I'm saying if things aren't right for you then speak up.

Reply
  • I too found h.m. not helpful in the slightest. They made me worse...until I pushed for further treatment saying what I'd done previously wasn't helping. I also complained to the manager because of how one of the therapists talked to me. I figured if more people did the same perhaps they might listen. These places are supposed to help but 9/10  make it worse. Then the organisation for autistic individuals in my area is even worse so I've just avoided.

    The most helpful thing really has been talking to a private counsellor who was autistic themselves. If you can afford it and can find one it's really worth it. This has been far more helpful in understanding autism from a non-deficit point of view, understanding how my brain works and acceptance. This was better than trying to mould my brain everytime I got anxiety. I understood the CBT and went through the motions but I don't think it was very effective just because I'm wired differently. They are putting autistic people through treatment which isn't effective and this is a waste of resources and time for everyone involved. Ive heard ACT, CAT & DBT are more suitable.

    I'm saying if things aren't right for you then speak up.

Children