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Sister Having Meltdowns

Charlotte

Hey. I'm Charlotte, I have autism which is a recent diagnosis I just turned 16 and am struggling to make sense of everything. Not much support and it's very much like I've been dropped in the wild and have to figure out how to survive lol.

My sister also has autism she was diagnosed before me. We went to the same school and every day was the same she had a meltdown and refused to go in. She would hit the fence, doors, teachers and bite herself. She hurt herself a lot. In the end it became a daily thing that I had to go out and talk to her and get her inside which I managed to do she trusts me. But I finished school now and she's on her own and is really struggling, she's been unable to go in since school started again and my family and I aren't really sure what to do to help her. School aren't being helpful at all going on about her attitude and attendance. She's actually a very lovely girl but when she's upset she does lose it, she can't help it. I'm the same if I'm taken out of my comfort zone in a big way.

I've suggested she take her comfort bear with her but my mum is worried she'll be bullied. 

Bit lost at what to do about this situation.

  • I have no magic answers, but at least your sister has you. You will always get it.

    Your mum is right that she may find her bear comforting, but her classmates won't understand. I'm not defending them btw. She ought to have the right to take her bear if it helps.

    Sounds like your sister need an education other than in that school.

  • in reply to piggy1401

    Hey  . Thank you for your reply and your kindness. I'm glad you found this community to be a big support for yourself. I'm hoping it'll be the same for me. That's great you were diagnosed at 16. It is a bit crazy isn't it, like a good crazy I think but everything just suddenly makes sense but you still feel kind of in the dark. I wish there was a little more support after diagnosis. Hopefully I'll find it here like you have Slight smile yes I'm at college now, it's a bit hard and stressful but I think I'm doing ok so far.

    Yes it is very tricky with my sister. She just gets so worked up and can't cope and I think it is just a burst of frustration. I get similar but not as frequently as she does. I seem to be the only one who can calm her quickly, which was handy when I went to school but obviously I'm not there now. I think her comfort bear would be a big help as well. Think our mum is over worrying to be honest. Her class are aware of her struggles but luckily she isn't bullied which I'm glad about.

    I wish the school themselves were a bit more understanding. They judge a lot and just moan about attendance and her work. If they were a bit more understanding I think it would be better for her. But one thing at a time for now.

    Thanks piggy. I appreciate your reply and kindness.

    Charlotte x

  • Hi Charlotte,

    Sorry that you are struggling to make sense of everything, hopefully you can find some support on here. i was diagnosed when i was 16 so i understand how you feel. Support seems to be non-existent for a lot of us. Admittedly, this has become a huge support for me. Are you at college now then?

    Sounds like a tricky situation with your sister. if you think that the bear will help then maybe give it a try, sounds like her classmates are aware of her difficulty with getting into school so i doubt that she will be bullied, and it might help her get back into school. The school should be giving her support rather than just moaning about attendance, maybe talk to your sister about what might help her (sounds like you have a really good relationship), sometimes having something as simple as a different start time or a quiet place to go can make all the difference.

    Good luck

    Alisha xx