6yr old has been assessed - Please help

Hi

Last year we reached breaking point following another stressful family holiday, our now 6 year old has always been a little different, however his obsessions, melt downs, routine requirements have been a daily struggle to manage.  The school just kept telling me he was imature and needed to concentrate and listen!

I contacted the school nurse directly and after persistant phone calls managed to get my son an appointment with a peadiatrican, he has seen him twice now and at the last appointment said he had concerns with my sons sensory issues (tip toe walking, holding stones) and social behavioural difficulties, poor concentration, poor diet only solid foods (3) He has referred him and i've been waiting for 3 months to hear something.

I found out today from his teacher my sons been assessed in school by the community nurse, who has said she has referred him for his sensory issues but that no further action is required, what does this mean???

surely they cant assess my son for an hour in a class room and get a full diagnosis?!

please help any feedback would be appreciated, i'm told i will get a report but i'm sure this will take months as it usually does. I'm just worried my son is being let down

thanks x

Parents
  • Hi mummy4

    Sorry I've not been in touch. Life is hectic. The situation with your son sounds very frustrating. I wonder how knowledgeable the school nurse ichat out children on the spectrum. I know he's got an ADOS report in September but in the meantime they should offer you some more support. 

    Is there any support groups where you live? Sometimes children's centres run groups for children with special needs. Because the children behave in a similar way they feel more comfortable to behave like they do & the patents understand too as they're in the same boat. 

    Keep in touch as I've thought a lot about you & your situation. We aren't through everything with our son yet but I fully understand how frustrating it cn be.

    Have a great weekend.

    Take care. Xxxx

Reply
  • Hi mummy4

    Sorry I've not been in touch. Life is hectic. The situation with your son sounds very frustrating. I wonder how knowledgeable the school nurse ichat out children on the spectrum. I know he's got an ADOS report in September but in the meantime they should offer you some more support. 

    Is there any support groups where you live? Sometimes children's centres run groups for children with special needs. Because the children behave in a similar way they feel more comfortable to behave like they do & the patents understand too as they're in the same boat. 

    Keep in touch as I've thought a lot about you & your situation. We aren't through everything with our son yet but I fully understand how frustrating it cn be.

    Have a great weekend.

    Take care. Xxxx

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