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6yr old has been assessed - Please help

mummy4

Hi

Last year we reached breaking point following another stressful family holiday, our now 6 year old has always been a little different, however his obsessions, melt downs, routine requirements have been a daily struggle to manage.  The school just kept telling me he was imature and needed to concentrate and listen!

I contacted the school nurse directly and after persistant phone calls managed to get my son an appointment with a peadiatrican, he has seen him twice now and at the last appointment said he had concerns with my sons sensory issues (tip toe walking, holding stones) and social behavioural difficulties, poor concentration, poor diet only solid foods (3) He has referred him and i've been waiting for 3 months to hear something.

I found out today from his teacher my sons been assessed in school by the community nurse, who has said she has referred him for his sensory issues but that no further action is required, what does this mean???

surely they cant assess my son for an hour in a class room and get a full diagnosis?!

please help any feedback would be appreciated, i'm told i will get a report but i'm sure this will take months as it usually does. I'm just worried my son is being let down

thanks x

Parents

  • Hi All

    I took your advice and spent the morning locating the right department, i've spoken to the community nurses secretary, who was nice, the reports being written up but i probably wont get a copy as they dont send them out if theres not much to say but she then told me my sons on a list for an appointment at the end of sept for an ADOS assessment where i can ask questions and voice my concerns. She said they would be no further appointments needed

    My question is does this test assess sensory issues or help him with tip toe walking etc?

    It looks like its more of an assessment for autism does this include aspergers or is it different? with no other appointments needed, is this being done just to tick the boxes as they dont think he requires any support, however i do take on board crystal what you have said re funding and money so maybe they wouldnt just do an assessment if they didnt think any was required?

    She did try to reassure me but i'm still not clear on what they are assessing on, maybe i'm not understanding the whole process

    Thanks again

     

Reply

  • Hi All

    I took your advice and spent the morning locating the right department, i've spoken to the community nurses secretary, who was nice, the reports being written up but i probably wont get a copy as they dont send them out if theres not much to say but she then told me my sons on a list for an appointment at the end of sept for an ADOS assessment where i can ask questions and voice my concerns. She said they would be no further appointments needed

    My question is does this test assess sensory issues or help him with tip toe walking etc?

    It looks like its more of an assessment for autism does this include aspergers or is it different? with no other appointments needed, is this being done just to tick the boxes as they dont think he requires any support, however i do take on board crystal what you have said re funding and money so maybe they wouldnt just do an assessment if they didnt think any was required?

    She did try to reassure me but i'm still not clear on what they are assessing on, maybe i'm not understanding the whole process

    Thanks again

     

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