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6yr old has been assessed - Please help

mummy4

Hi

Last year we reached breaking point following another stressful family holiday, our now 6 year old has always been a little different, however his obsessions, melt downs, routine requirements have been a daily struggle to manage.  The school just kept telling me he was imature and needed to concentrate and listen!

I contacted the school nurse directly and after persistant phone calls managed to get my son an appointment with a peadiatrican, he has seen him twice now and at the last appointment said he had concerns with my sons sensory issues (tip toe walking, holding stones) and social behavioural difficulties, poor concentration, poor diet only solid foods (3) He has referred him and i've been waiting for 3 months to hear something.

I found out today from his teacher my sons been assessed in school by the community nurse, who has said she has referred him for his sensory issues but that no further action is required, what does this mean???

surely they cant assess my son for an hour in a class room and get a full diagnosis?!

please help any feedback would be appreciated, i'm told i will get a report but i'm sure this will take months as it usually does. I'm just worried my son is being let down

thanks x

Parents

  • Thank you leesy lou and crystal12 for both taking time to respond, I sometimes feel like i'm going mad or a bad parent for pushing for a diagnosis, its actually the last thing we want and would love for a professional to say everything is ok but not when they dont know all the facts or havent spent anytime with my son.

    I will google CAMHS, would it make it akward with the professionals/community nurse if i go down this route, the school nurse was initially extremely rude as I had made the call myself and it hadnt come through the school, the school actually asked me why he walked on his tip toes and had i tried telling him to stop because it was a bad habit!!

    When i told the head teacher the pead was concerned and was referring him she told me that 'you dont want to get involved with all that, he doesnt need extra support he'll stand out' which obviously upset me, because i dont want him to stand out but i also dont want him to continue to struggle, luckily he's bright so for now he's keeping up with school work academically

     

    I'm hoping the report comes through soon so i can see what they've actually assessed him on, as a few hours at home with him would paint a different picture ( he's currently got his silly head on as my brother in law has just visited, which sets him off if that makes sense)

    Thanks again, i will follow up on the above advise, much appreciated

    x

Reply

  • Thank you leesy lou and crystal12 for both taking time to respond, I sometimes feel like i'm going mad or a bad parent for pushing for a diagnosis, its actually the last thing we want and would love for a professional to say everything is ok but not when they dont know all the facts or havent spent anytime with my son.

    I will google CAMHS, would it make it akward with the professionals/community nurse if i go down this route, the school nurse was initially extremely rude as I had made the call myself and it hadnt come through the school, the school actually asked me why he walked on his tip toes and had i tried telling him to stop because it was a bad habit!!

    When i told the head teacher the pead was concerned and was referring him she told me that 'you dont want to get involved with all that, he doesnt need extra support he'll stand out' which obviously upset me, because i dont want him to stand out but i also dont want him to continue to struggle, luckily he's bright so for now he's keeping up with school work academically

     

    I'm hoping the report comes through soon so i can see what they've actually assessed him on, as a few hours at home with him would paint a different picture ( he's currently got his silly head on as my brother in law has just visited, which sets him off if that makes sense)

    Thanks again, i will follow up on the above advise, much appreciated

    x

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