in limbo

Hi, I have a 4 year old son who is waiting for an ASD assessment. The waiting list where I live is really long and it wont be until May next year.

I feel like I am struggling - I dont know how to deal with his behaviour and I dont have anyone to ask. I dont even know if he has an ASD or not. In so many ways he seems normal, but his speach is delayed and seeing the SALT, he is obsessed by animals, he pretends he is an animal in a cage, it doesnt matter where we are, he insists on being inside the trolley when we go shopping, and he howls at people when they go past - rather embarrasing, more so the older he gets. 

He has twin girl sisters who are 2 and a half, and although he is really effectionate and caring, he doesnt understand emotions and when he is hurting them. He has very fixed ideas about what we should be doing and where we should be going, and all hell breaks loose if it is not what he expects. He has funny ideas about his clothes, doesnt lke to wear new clothes and doesnt like the buttons on his jeans done up. He likes small spaces and sitting in boxes, and is sensitive to noise.

Am I just fooling myself thinking he might not be autistic? I just keep looking at him and assessing everything he does. Should I be trying to make him fit in more socially, or let him do his own thing?

Icant believe I am going to have to wait another 13 months, he was referred 12 months ago, so that will be over 2 years of waiting. Iis that normal?

Christine

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Parents
  • Thank you for your replies, I am sad you feel the same as me bear, but releived I am not the only one too!! Not having a diagnosis means we cant come to terms with anyhthing, and I am sure you are like me in that Ii cant picture how his furure will pan out.

    Thank you for the tip on the app, Ii shall look into it

    Christine

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Reply
  • Thank you for your replies, I am sad you feel the same as me bear, but releived I am not the only one too!! Not having a diagnosis means we cant come to terms with anyhthing, and I am sure you are like me in that Ii cant picture how his furure will pan out.

    Thank you for the tip on the app, Ii shall look into it

    Christine

    x

Children
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