• Replies 10 replies
  • Subscribers 25 subscribers
  • Views 2343 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

How long we gona have to wait??????

virginie2010

Hi

I am contacting to get some help and advise

My son is been seen on the 10 May 2012 by a doctor. The Doctor referred my son to the social communication difficulty clinic as she was susppecting him to have Autistic spectrum Disorder. On that day,The Doctor mentioned that it will take 9 month to get a appointement.

I kept on calling the children services to have an update on the appoitement date and still today my son didn't get his appointement.

I find out that his name is been putting down on the waiting list for the appointement in September 2012 (while is been seen in May).also they told me that the clinic was running part time only.

I then decided in February to complain to the person who is in charge regarding my son assesment waiting time. I mentioned to him that I was strongly beleive that my son behaviour would have improved by now if he had the chance to be seen at the Social Communication Difficulty Clinic. I also ask for my son to be referre at a different clinic where he could be seen as soon as possible.

I receive a phone call from this person in charge  on the 27 March and he explained to me that we would have to wait 12 to 18 month for my son appointement and He was not able to referre my son somewhere else. This person mentioned that he will write to me and I am still waiting for his response.

I feel frustrated as my little boy could by now do much better. Is anyone experience this situation. I decided to contact my Mp. What else can I do for my son to be finaly diagnose????


Parents

  • I am on the waiting list to be diagnosed with autism and it has been so long since then. I got a phone call from my doctor to say that I have gotten referred but I have no other proof that something is actually being done about it. It has been hard for me as I am an unregistered visually impaired person with autism. Recently my condition has gotten worse as my mobility and balance issues have become more noticeable.

    I am hoping after my diagnosis I can gain more access and more help from the services such as bus pass and more recognition of my condition. It just ticks me off about how long an adult or classed as an adult has to wait to be issued an appointment. It has been driving me crazy because my past schools should have picked up on my disabilities and now I am nearly an adult with no diagnosis and struggling through life with my physical, emotional and mental struggles.

    IT'S JUST NOT FAIR. There should be more services and quicker waiting times. Society does not get the desperate need one has to claim the benefits of a professional, official diagnosis. This is injustice to us and we should not be discriminated or denied access to those facilities when we have the very right to use them. It's what they are there for!

Reply

  • I am on the waiting list to be diagnosed with autism and it has been so long since then. I got a phone call from my doctor to say that I have gotten referred but I have no other proof that something is actually being done about it. It has been hard for me as I am an unregistered visually impaired person with autism. Recently my condition has gotten worse as my mobility and balance issues have become more noticeable.

    I am hoping after my diagnosis I can gain more access and more help from the services such as bus pass and more recognition of my condition. It just ticks me off about how long an adult or classed as an adult has to wait to be issued an appointment. It has been driving me crazy because my past schools should have picked up on my disabilities and now I am nearly an adult with no diagnosis and struggling through life with my physical, emotional and mental struggles.

    IT'S JUST NOT FAIR. There should be more services and quicker waiting times. Society does not get the desperate need one has to claim the benefits of a professional, official diagnosis. This is injustice to us and we should not be discriminated or denied access to those facilities when we have the very right to use them. It's what they are there for!

Children
No Data