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How long we gona have to wait??????

virginie2010

Hi

I am contacting to get some help and advise

My son is been seen on the 10 May 2012 by a doctor. The Doctor referred my son to the social communication difficulty clinic as she was susppecting him to have Autistic spectrum Disorder. On that day,The Doctor mentioned that it will take 9 month to get a appointement.

I kept on calling the children services to have an update on the appoitement date and still today my son didn't get his appointement.

I find out that his name is been putting down on the waiting list for the appointement in September 2012 (while is been seen in May).also they told me that the clinic was running part time only.

I then decided in February to complain to the person who is in charge regarding my son assesment waiting time. I mentioned to him that I was strongly beleive that my son behaviour would have improved by now if he had the chance to be seen at the Social Communication Difficulty Clinic. I also ask for my son to be referre at a different clinic where he could be seen as soon as possible.

I receive a phone call from this person in charge  on the 27 March and he explained to me that we would have to wait 12 to 18 month for my son appointement and He was not able to referre my son somewhere else. This person mentioned that he will write to me and I am still waiting for his response.

I feel frustrated as my little boy could by now do much better. Is anyone experience this situation. I decided to contact my Mp. What else can I do for my son to be finaly diagnose????


Parents

  • Thank you Hope for your response, what do you mean by your motor skills, were you hyperactif? I am suspecting my little boy to have aspergers. He can recognise small word like kite, or cat, he recognise letter and number such 100 and he's not 3 yet. on the other hand he's not gone ask me when he want something, he's gone try to get it on his own or he's gone cry, he's not gone give me any clue on what he want. He's crying a lot since day 1 and he's got a challenging behaviour put himself in danger. he started to talk and as he's got two languages (i am speeking French to him) he's not doing to bad.

    But I am not a professional and I find it difficult to deal with him on a daily basis. No one is telling how should I act with my boy. I think I am more though with my little girl and I feel gulty about this.

    I am thinking also to contact the local press regardding the time that we have to wait for an assesment. I am just living 30 minutes away from centre London and I can't beleive this think happen.

    KaloJaro, Thank you for sharing your story with me. This is not acceptable to have to wait that long.did your parents complain about this?

Reply

  • Thank you Hope for your response, what do you mean by your motor skills, were you hyperactif? I am suspecting my little boy to have aspergers. He can recognise small word like kite, or cat, he recognise letter and number such 100 and he's not 3 yet. on the other hand he's not gone ask me when he want something, he's gone try to get it on his own or he's gone cry, he's not gone give me any clue on what he want. He's crying a lot since day 1 and he's got a challenging behaviour put himself in danger. he started to talk and as he's got two languages (i am speeking French to him) he's not doing to bad.

    But I am not a professional and I find it difficult to deal with him on a daily basis. No one is telling how should I act with my boy. I think I am more though with my little girl and I feel gulty about this.

    I am thinking also to contact the local press regardding the time that we have to wait for an assesment. I am just living 30 minutes away from centre London and I can't beleive this think happen.

    KaloJaro, Thank you for sharing your story with me. This is not acceptable to have to wait that long.did your parents complain about this?

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