• Replies 10 replies
  • Subscribers 25 subscribers
  • Views 2345 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

How long we gona have to wait??????

virginie2010

Hi

I am contacting to get some help and advise

My son is been seen on the 10 May 2012 by a doctor. The Doctor referred my son to the social communication difficulty clinic as she was susppecting him to have Autistic spectrum Disorder. On that day,The Doctor mentioned that it will take 9 month to get a appointement.

I kept on calling the children services to have an update on the appoitement date and still today my son didn't get his appointement.

I find out that his name is been putting down on the waiting list for the appointement in September 2012 (while is been seen in May).also they told me that the clinic was running part time only.

I then decided in February to complain to the person who is in charge regarding my son assesment waiting time. I mentioned to him that I was strongly beleive that my son behaviour would have improved by now if he had the chance to be seen at the Social Communication Difficulty Clinic. I also ask for my son to be referre at a different clinic where he could be seen as soon as possible.

I receive a phone call from this person in charge  on the 27 March and he explained to me that we would have to wait 12 to 18 month for my son appointement and He was not able to referre my son somewhere else. This person mentioned that he will write to me and I am still waiting for his response.

I feel frustrated as my little boy could by now do much better. Is anyone experience this situation. I decided to contact my Mp. What else can I do for my son to be finaly diagnose????


Parents

  • My parents thought something was different about me since I was 3 years old, but as it was very subtle, and Aspergers was not really talked about back then (in the early 90s), they did not have any answers. My motor skills were a cause for concern, and I had severe perceptual difficulties. I learnt some skills really quickly, like learning to read, but other skills did not develop as they should, such as my comprehension.

    I have always had friendship and relationship difficulties, which got worse the older I got. I also developed OCD and grew very anxious, due to taking things literally.

    My dad, a teacher, first learnt about aspergers in the year 1998, during an awareness raising course at his college. My parents became increasingly convinced that this is what I had; my mum had always suspected I was 'slightly autistic', but as I learnt to talk on time and was fairly able, she was not sure. It was only once they found out about Aspergers that things became clear. However, I did not get diagnosed until 11 years later, after I was referred to the mental health team for my OCD. I was then referred to the adult autism team for diagnosis.

Reply

  • My parents thought something was different about me since I was 3 years old, but as it was very subtle, and Aspergers was not really talked about back then (in the early 90s), they did not have any answers. My motor skills were a cause for concern, and I had severe perceptual difficulties. I learnt some skills really quickly, like learning to read, but other skills did not develop as they should, such as my comprehension.

    I have always had friendship and relationship difficulties, which got worse the older I got. I also developed OCD and grew very anxious, due to taking things literally.

    My dad, a teacher, first learnt about aspergers in the year 1998, during an awareness raising course at his college. My parents became increasingly convinced that this is what I had; my mum had always suspected I was 'slightly autistic', but as I learnt to talk on time and was fairly able, she was not sure. It was only once they found out about Aspergers that things became clear. However, I did not get diagnosed until 11 years later, after I was referred to the mental health team for my OCD. I was then referred to the adult autism team for diagnosis.

Children
No Data