• Replies 3 replies
  • Subscribers 27 subscribers
  • Views 1120 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Hard time getting help for health

BabyPotato

I'm having a real hard time and I feel like I just need somewhere to vent and lay out all of my frustrations.

I'm very clearly unwell. I have fevers all the time, I'm constantly nauseas and vomiting, I get fed through a feeding tube and the tiredness is unreal. Sometimes I'm sick so much that my electrolytes go out of balance and I have to replace them which is really uncomfortable and causes bad cramping. 

The doctor said that it's all in my head and this is what frustrates me, I would 100% believe her if she looked at the evidence and could explain to me why it's not relevant, but she doesn't. She just dismisses everything saying that it never happened when it did happen and I have multiple witnesses. For example, she said that I won't vomit if I don't eat, but the night before the nurses watched me vomit large amounts despite the fact that I wasn't eating or drinking at all. I was being watched 24/7 by a RMN. 

I'm not getting ay better and she always makes it seem like it's my fault. My sister tripped over my feed bag and one of the stitches ripped out and she said that I should only be feeding overnight. That would be literally impossible because I wouldn't get enough calories in. Under her care I lost 16 kgs in hospital, Had unstable blood sugar, had unstable electrolytes and they had to call the crash team and do CPR on me because I was found without a pulse and not breathing.This was all because she wanted to take out the feeding tube I had for 2 years and make me eat and drink without any fluids or medications. She later tried to discharge me with dangerous electrolyte levels and the ward manager had to intervene just to get me the IV fluids because a junior doctor was about to prescribe them and she said that I should't have them because this is a psychological problem and I just need to increase my oral intake ( which is what caused the problem) 

I'm impatient and want to get on with life. I got a new job and it's the best thing in the world. I'm enjoying it more than anything. The issue is that it's full time and It's too much for me.I'm exhausted and loosing weight. I feel like I can't quit because that would be giving up and let's face it this could be all there is, Things aren't getting any better . My Dad is also talking about stopping child support so I really need the money to help my mum out. 

Parents

  • I personally would, if unhappy with a doctor's opinion demand a second opinion. A few years ago, I fell ill suddenly and they told me just like you, that it was all in my head...... After demanding to be referred after 6 months worth of GP appointments.... Turned out my body was attacking itself and I was basically a big swollen mess inside! My stomach, lungs, airways, digestive system the works.... End of the day, we know when something isn't right with our own bodies, don't let them fob you off! 

    Warning trigger warningWarning️️

    Also, a year or so ago, my dad had the same thing, they said it was an infection causing a lump in his neck, turns out he had really aggressive cancer and was dead within 4 weeks! Btw- that is very rare and is very unlikely to happen but just trying to give some context 

  • in reply to COOKIES280

    Thanks , a second opinion hasn't been possible because our GP has to refer us and they send all of the notes and letter from the original doctor which messes everything up. 

    I'm sorry to hear about your dad. I know exactly what is wrong with me I just can't seem to get the help. My mum has similar issues and is trying to get herself diagnosed so that they can use her ( as autoimmune diseases have genetic components) but it's a long process and I'm one again Hypokalaemic. It's dangerous but the issue is that I could go to A&E and then they could do nothing because they have done in the past. Unless I go at night where they can't get a consult from the doctor but I don't have time because I work and I don't want my parents to find out. I'm stuck at home trying to fix it and it's stressing me out a bit. (not helping with the whole heart situation) 

  • in reply to BabyPotato

    Can you perhaps get a second opinion from another GP? 

Reply Children
No Data